Invisible Labour of Public involvement

No.1: Invisible Labour of Public Involvement

This is the first in a series of ARC National events on Patient and Public Involvement research which aims to foster conversations and methodological development of patient and public involvement, inclusive involvement and co-production.

Dr Stan Papoulias and Dr Louca-Mai Brady will discuss their recent paper and blog post on the ‘invisible labour of public involvement’ and the role of the NIHR public involvement workforce (staff and researchers who support public involvement in research). The webinar will explore the importance of understanding the perspectives and needs of this workforce, both for embedding public involvement in health and care research, and in relation to new NIHR requirements for inclusive research and sustainable community engagement with a facilitated discussion. There will be opportunities to have a discussion around the themes of the paper.

Introduction

Dr Elspeth Mathie, Assistant Director, Centre of Research in Public Health and Community Care (CRIPACC), University of Hertfordshire. Lead of Inclusive Involvement in Research, NIHR Applied Research Collaboration (ARC), East of England.

Speakers

Dr Stan Papoulias is Research Fellow at the Service User Research Enterprise (SURE) a unit comprised of researchers with direct experience of neurodiversity, trauma and mental distress at King's College London. Stan uses qualitative and participatory methods to explore lived experience as a form of knowledge and the ways in which working conditions of staff shape research. Stan's work has included evaluating public involvement in different research organisations and they have collaborated in the production of a competency framework for the public involvement workforce. Stan is also involved in developing a community based model for ethical research and is one of the commissioners in the Lancet Psychiatry Commission on Lived Experience in mental health research.

Dr Louca-Mai Brady is a Reader in Youth Involvement and Health at the Centre for Public Health and Community Care, University of Hertfordshire, UK. Her research focuses on children and young people's participation in health and care services, co-production and public involvement, and qualitative, participative and creative research methods. As well as leading the Herts young people’s research advisory group and a participative project on young people’s participation in an Integrated Care System, she also supports young people’s involvement in research including a study on young Muslim women’s mental health, food in special schools and a Europe-wide study on problematic internet use amongst teenagers.

https://go.herts.ac.uk/loucamai_brady https://bsky.app/profile/louca-mai.bsky.social

This webinar is jointly hosted by NIHR Applied Research Collaborations (ARCs) South London, East of England and South West Peninsula.

If you have any questions about the event please contact Reena Masrani ([email protected])

Host or Publisher Applied Research Collaboration East of England