IN PERSON: Let us COCO & Celebrate The Doers: In person

About the event: IN PERSON REGISTRATION

Let’s COCO: Celebrating the Doers is an uplifting event from the Equality, Diversity and Inclusive Research Association (EDIRA).

This hybrid event brings together people from research, health, education, and community sectors to recognise and celebrate those making a real difference in equality, diversity, and inclusion—especially for rare disease and marginalised communities.

Our EDIRA PARTNERS have worked with remarkable and innovative teams who have addressed issues of health equity and inclusion. hey have made a significant impact on the quality of life for diverse and underserved communities accessing health services, and for rare disease patients and families. We want to celebrate and learn from their innovative work.

This event is a must if yu want to hear case studies from our EDIRA Partners, collaborators, and sponsors. These presentations will showcase real-world examples of:

1. Equality, Diversity, and Inclusion (EDI): Tackling barriers, building trust, and promoting public participation and engagement for all communities.
2. Rare Disease Advocacy: Elevating the voices and lived experiences of rare disease patients, and advancing narrative-based, trauma-informed approaches.
3. Health Education: Raising awareness of cultural competence and rare disease issues, and supporting inclusive, accessible education for healthcare professionals and the public.
4. Inclusive Research: Promoting health literacy, patient-centricity, and diversity in research and clinical trials through innovative, participatory methods.
5. Service Innovation and Improvement: Advancing practical solutions, digital health, and co-designed services to improve quality of life and care for all.

You’ll also join lively panel discussions, network with others passionate about positive change, and celebrate unsung heroes making impactful contributions across these five areas.

Everyone is welcome—whether you’re a professional, advocate, or community member interested in advancing inclusion and health equit
If you are working in clinical researche, pharmaceutical industry, healthcare or patient advocacy. and want to understance how the 'Doers' achieve their outcomes, this event is for you.

The Book of Doers

One key output from our event will be the co-production of a collection of case studies from EDIRA Partners, Collaborators and Sponsors.

The publication will showcase successful projects related to

1. Equality Diversity and Inclusion
2. Rare Disease Advocacy
3. Health Education
4. Inclusive Research
5. Service Innovation and Improvement

Info: Meet other delegates and enjoy a networking buffet lunch.

Info: Reflections and introduction to the next session.

Info: Evening Networking Event: Celebrating the Doers
Join us for a special evening dedicated to recognising the “Doers”—teams and advocates nominated by EDIRA partners for their outstanding examples of good practice in equality, diversity, and inclusion. We will honour those making a real impact through collaboration, outreach, co-creation, and positive outcomes for rare disease and marginalised communities.

Host or Publisher RareQoL