Beaverton: Advanced Stage Family Caregiver Workshop (In-Person)

The advanced stages of Parkinson's disease may last anywhere from several months to several years. Often, intensive around-the-clock assistance is required. In the advanced stages of PD, families are called upon to make difficult decisions about their loved one's care. Even with the understanding that Parkinson's disease is progressive, it is often hard to be prepared for the reality of what this actually means and looks like.

This education workshop is designed to equip family members and caregivers with the knowledge and resources to approach the advanced stages of the disease with greater confidence. Recognizing that every family situation is unique, this program will educate caregivers about the issues and decisions impacting quality of life. This includes an exploration of the physical and cognitive changes to expect, as well as the other medical apsects of advanced PD; the legal considerations to be aware of including long-term care basics, power of attorney, and Medicaid planning; and finally a discussion of hospice services - what it really means, when it may be appropriate, and how to start this important conversation early.

Workshop Agenda:

12:30pm - Check-in and networking

1:00pm-2:00pm Dr. Joanna O'Leary, MD - Medical Concerns and the Cognitive/Emotional Aspects of Advanced Parkinson's diease

2:00pm-2:15pm Short Break

2:15-2:45 Jennifer Trundy, JD - Legal Consideration

2:45-3:15 Brittany Haugen Hospice - What it is and When to Engage

3:15-4:00pm Anna Sanger Reed, PRO Program Director, What Does this All Mean?

4:00pm Adjourn

Presenters:

Dr. Joanna O'Leary, M.D., Providence Neuroscience Institute, Movement Disorder Program

Dr. O'Leary is the co-director of the movement disorder clinic at Providence with a practice based at St. Vincent’s Medical Center. She earned her medical degree from Rush University in Chicago, Ill., and completed her internship, residency, and movement disorder fellowship at Oregon Health & Science University in Portland.

Jennifer Trundy, JD Rose Elder Law

Jennifer earned degrees from the University of Oregon and Willamette University College of Law. Her mission in the practice of law is to honor, educate, and protect the rights of her clients through her focus on estate planning, long term care planning, and Medicaid qualification.

Brittany Haugen, Community Outreach Liaison Care Partners (ONHA)

Brittany has spent more than nineteen years working in healthcare and senior living, helping people navigate major care decisions with compassion and understanding. For the past year, she has served as the Community Outreach Liaison for Care Partners, a nonprofit hospice, where she connects families with resources and support during tender times. She holds a Bachelor of Science in Social Sciences from Portland State University and is committed to continued learning and growth in her field.

Host or Publisher Parkinson's Resources of Oregon