TURNER SYNDROME SUPPORT SOCIETY UK MEET THE EXPERT DAY

Turner Syndrome Support Society UK

Turner Syndrome Support Society UK

“ Turner Syndrome Seminar Day ” 7th of March 2025

“Collaborating for better understanding of heart & fertility risks in TS”

Golden Jubilee Conference Hotel, Beardmore Street. Clydebank, Glasgow, G81 4SA

An Education Day open to all Healthcare Professionals involved in the

care of girls or women with Turner Syndrome [TS]

The Turner Syndrome Support Society [UK] is proud to be hosting this event with support from Novo Nordisk. This is a day that was planned for the 10th Turner Syndrome International Conference [TSI2020], but it had to be canceled because of the pandemic.

The theme for this Education Day is

“Collaborating for better understanding of heart & fertility risks in TS”

All too often, we hear about girls and ladies with TS having to make choices regarding heart care, treatment, and surgery. This can often have implications for their fertility options. the girls, ladies, and their families must make complex decisions affecting their future health. Both healthcare professionals and families want the best for their patients. We thought bringing you together to discuss the latest research findings and clinic experiences from different countries would be beneficial. We wanted to provide an opportunity for Health Care Professionals to come together to share their knowledge and expertise. We will have expert panel discussions, with Prof Gerry Conway, Prof Claus Gravholt, Prof Melanie Davies, Dr Helen Turner, Prof Jo Blair Endocrinology, Genetic, Cardiac & Fertility teams from Glasgow, London & Denmark, and many more, plus short presentations and poster presentations.

This an open invitation to any Health Care professional interested in TS to attend as a delegate and take part in discussions. Please share this invitation but be aware that places are limited.

A full-day education programme

An opportunity to submit a 10-minute oral presentation and/or a poster

A rare opportunity to meet colleagues with TS specialist knowledge and to share

and hear personal stories from individuals who have TS

The cost is £75 per person.

Book via this link https://TSSSUKMeetTheExpertDay25.eventbrite.co.uk

Booking is available until the 3rd of February 2025 via .uk

Oral & Poster Presentation Submissions to Arlene Smyth by 20th of January 2025 –

Turner Syndrome Support Society UK

“ Turner Syndrome Seminar Day ” Friday 7th of March 2025

“Sharing information for better understanding of heart & fertility risks in TS”

atGolden Jubilee Conference Hotel, Beardmore Street. Clydebank, Glasgow, G81 4SA

Preliminary Programme

Preliminary Programme

09:00 Coffee & Registration

09:30 Introductions & information: Arlene Smyth – Executive Officer

09:40 Welcome: Prof. Gerry Conway & Prof Melanie Davies Patrons of the TSSS UK

Morning Panel members: Dr Tony Hulse (UK), Prof Jo Blair (UK), Dr Alene Shantsila (UK) Dr Caroline Brain UK), and many more

10:00 – 11:00 Paediatric Session 1 – Diagnosis of cardiac conditions and treatments.

Paediatric Cardiac Experts will share their knowledge on what to look for to diagnose and treat BP and cardiac care in TS early.

11:00 - 12:00 Paediatric Session 2 – Induction of puberty and preparation for fertility options.

Optimal induction of puberty schedules will be discussed, along with the impact on potential fertility. There will be a discussion on current treatment options and the prognosis for girls with TS now and in the future.

12:00 – 12:30 Paediatric short oral presentations

12:30 -13:30 Lunch and a chance to network with colleagues from across Europe. Poster viewing

Afternoon Panel members: Prof. Gerry Conway (UK), Ms. Melanie Davies (UK), Dr. Claus Gravholt (Denmark), Dr Helen Turner (UK) Ass. Prof. Anne Shakkeaek (Denmark) Dr Liz Orchard (UK) Sr. Emma Weingart (UK)

13:30 – 14:30 Adult Session 1 – Adult cardiac care

Adult Experts share their knowledge on the transition to adult care, BP & cardiac management,

14:30 – 15:30 Adult Session 2 – Pregnancy and fertility preservation

An update on international access to fertility preservation and opinions on pregnancy care

15:30 -16:00 Afternoon Tea

16:00 -17:15 Open presentations by doctors, nurses and other specialties

17:15 -17:30 Summary and closing remarks by Dr Tony Hulse

This is a draft programme and is subject to change CPD approval is being applied for this event.

This is a draft programme and is subject to change

Supported by Novo Nordisk, and the TSSS UK

Host or Publisher Arlene Smyth