Rare Disease Day Bay Area 2025

Please join us for our 7th Annual Rare Disease Day Bay Area event on Saturday, March 1st from 12-5pm. This event will take place at the Get Down Dance Studio and if weather permits, we will hold portions of the event right outside of the building. This is a free , family friendly event. Come an enjoy music by some amazing DJs and Bands. See a few dance performances and more. There will be guest speakers from the rare disease community including patients, advocates and community organizations. Please use our LinkTree for links to our event page, socials, donations links and more. https://linktr.ee/rarediseasebayarea

Tentative program schedule
12pm-12:05pm – Welcome
12:05pm-12:15pm -Diego Ramirez – Patient -Video
Rare Mamas – Org – Video
12:15pm-12:30pm -Victoria Arreola NORD Rare Action Network
Isabel Bueso – Patient
12:30pm-1:15pm – DJ Ethan S
1:15pm-1:40pm -Mike Annuzzi & Al Pace – Band
1:40pm-2:25pm -DJ Frankie B
2:25pm-2:35pm – Julia Métraux – Patient – Video
Chelsea Hope – Org – Video
2:35pm-3pm – Tamish -= Musical Performance
3pm-3:45pm – DJ Netwerk
3:45pm-3:50pm – 5ftJayants – Dance Performance
3:50pm-4pm – Awards
4pm-4:05pm – Cure Gm1 – Org – Video
4:05pm-4:50pm – DJ Cazius Clay
4:50pm-5:15pm – Osada3 – Band
5:15pm-5:25pm – Raffles and Acknowledgement

Info: 12pm-12:05pm - Welcome
12:05pm-12:15pm - Diego Ramirez - Patient -Video
- Rare Mamas - Org - Video
12:15pm-12:30pm - Victoria Arreola NORD Rare Action Network
- Isabel Bueso - Patient
12:30pm-1:15pm DJ Ethan S
1:15pm-1:40pm Mike Annuzzi & Al Pace
1:40pm-2:25pm Frankie B
2:25pm-2:35pm- Julia Métraux - Patient - Video
5 Chelsea Hope - Org - Video
2:35pm-3pm Tamish
3pm-3:45pm Netwerk
3:45pm-3:50pm 5ftJayants
3:50pm-4pm Awards:
4pm-4:05pm Cure Gm1 - Org - Video
4:05pm-4:50pm Cazius Clay
4:50pm-5:15pm Osada3
5:15pm-5:25pm Raffles and Acknowledgement

Host or Publisher Fred B