MLD Community Meeting at the ULF
Schedule
Sat, 27 Jun, 2026 at 12:30 am
UTC-05:00Location
Hilton Chicago/Oak Brook Hills Resort (Oak Brook, IL) | Oak Brook, IL
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Please join us June 27th in Chicago, IL at this year's ULF for the MLD Community Meeting. Virtual attendance is free, just use the link MLDULFVirtual2026.
The hybrid session will feature the following panels:
Moving beyond diagnosis:
Moderator: Asmahan Safi
Panelists: Matt Hammond,Kaprice Reinhard Shullanberger, and Tara Delaney Casey.
MLD Survivorship:
Moderator, Children's Hospital of Philadelphia neurologist Laura Adang,
Panelists: Cache Christensen, Amy Wright, George Morton, Cora and Sarah Cornell, and Sonal Patel.
Trauma and Healing for MLD Families
Presenters: Children's Hospital of Philadelphia social worker Sarah Stoney and Kat Renick
This will be an interactive session on how to support the entire family on their "leuko" journey.
Newborn screening update with Amy Gaviglio.
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Where is it happening?
Hilton Chicago/Oak Brook Hills Resort (Oak Brook, IL), Lobby Bar, 3500 Midwest Rd, Oak Brook, IL 60523, United StatesEvent Location & Nearby Stays:
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