M.E. Challenging Misinformation - Championing Real Research

Name: M.E. Challenging Misinformation - Championing Real Research
Start: 2025-11-08T19:00:00+00:00
End: 2025-11-08T20:30:00+00:00
Location: Mourne Country Hotel

Schedule

Sat Nov 08 2025 at 07:00 pm to 08:30 pm

UTC+00:00

Location

Mourne Country Hotel | Newry, NI

Join us! Dr Tuller & Prof Ponting tackle M.E. stigma, bad science & DecodeME insights. Real research-real hope for Northern Ireland patients
About this Event

For 14 years, Hope 4 ME & Fibro NI has campaigned for specialist M.E. services in Northern Ireland and championed our members to take part in the DecodeME study, placing N.I. patients at the heart of world-leading ME research.

We are delighted to welcome Dr David Tuller back to Northern Ireland, with Professor Chris Ponting (via live link) Lead investigator of DecodeME Study, as they explore how flawed research has fueled stigma, disbelief, and poor care — and how patient-centered science is transforming the understanding of M.E. (Myalgic Encephalomyelitis)

Also joining the panel of experts is Professor Tom Trinick, Medical Advisor, Hope 4 ME & Fibro Northern Ireland is a respected consultant in metabolic and nutritional medicine, with many years of experience within the Northern Ireland health system.

This event will be of great value to patients, carers, and healthcare professionals seeking to better understand the biomedical evidence and improve care for people with M.E.

Q&A session will be facilitated- don't miss this unique opportunity to hear directly from the experts and have your questions answered.

Light refreshments available from 6.30pm (free for charity members or £5 payable on the night for non-members)

After the speaker presentations join us for the official launch of our new website!

Designed by patients and featuring co-produced materials with the HSC Clinical Education Centre (HSCCEC) and General Practice Northern Ireland (GPNI) and more!

The site offers trusted resources, and combines lived experience with clinical insight, and provides accessible and downloadable guidance for patients, carers, and practitioners alike.

We will demonstrate key features and outline its role in improving understanding of Myalgic Encephalomyelitis (ME) Fibromyalgia and Long Covid-induced M.E., and how this initiative aims to support better patient outcomes across Northern Ireland.