Huntington's disease Community Conference and AGM 2026
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Join us for the Huntington’s Disease Association’s annual Community Conference and Annual General Meeting (AGM).
This event brings together individuals, families, and professionals from the Huntington’s community to hear from expert speakers, share experiences, and learn more about care, support, and research.
For 2026, we will be returning to the beautiful Crewe Hall.
Event overview
Saturday 7 November 2026
We will be joined by a number of well-renowned speakers in the Huntington's community, with extensive knowledge of care, support, and research including:
Cath Stanley BEM, Chief Executive of the Huntington's Disease Association with an overview of 2025/2026 and talking about future plans for the year ahead.
Professor Hugh Rickards, Neuropsychiatrist and Chair of the Huntington's Disease Association leading the Annual General Meeting, which includes the appointment of trustees, auditors, and a financial update by our Treasurer, Nick Heath.
Professor Anne Rosser, Professor of Clinical Neuroscience, Division of Psychological Medicine and Clinical Neurosciences, Cardiff University providing an overview of current and upcoming Huntington's research.
Some of our Huntington's Ambassadors sharing their personal perspectives.
Uruj Anjum, Psychotherapist, Lecturer, Supervisor, Founder of Saiyna Therapy and Donna-Maria Dodson, Psychotherapeutic Counsellor and Supervisor, Saiyna Therapy exploring the emotional impact of Huntington's disease when relationships change.
Children and young people attending (up to 17 years) will have the option to join off-site activities with our Specialist Youth Engagement team. In previous years, these have included activities such as bowling, laser quest, escape rooms and theme parks.
In the evening, we will join together for a three course dinner which will take place in Crewe Hall's spectacular Long Gallery which dates back to Jacobean times.
Sunday 8 November 2026
We will be running smaller, more interactive workshops that you can choose from. Including topics such as:
Relaxation techniques
Reflexology
Emerging therapies
Palliative care
Children and young people will join our Specialist Youth Workers for further activities on-site. In previous years, these have included swimming, a film morning, and arts and crafts.
Please note: an adult over the age of 18 must be attending to purchase a child's ticket.
Who should attend
This event is open to anyone affected by Huntington’s disease, including:
Individuals living with the condition
Family members and carers
Friends
Professionals working in health and social care
Booking information
Bookings for the conference must be made through the Huntington’s Disease Association. They are not available through the hotel directly.
A range of ticket types are available via Eventbrite, allowing you to attend for the full weekend or for a single day.
After selecting your ticket, you will be asked to provide additional information, including:
Room preferences
Accessibility requirements
Dietary requirements
If the available ticket options do not meet your needs (for example, if you require additional travel or accommodation), or if you need support with your booking, please contact:
Telephone: 0151 331 5444 (press option 4)
Email: [email protected]
Where possible, alternative arrangements will be considered.
If you wish to stay over on Friday night or Sunday night, we have negotiated a special rate with the hotel, please call the reservations team at Crewe Hall on 03301071599. Let them know you are attending the Huntington's disease Community Conference and AGM to receive 20% off room prices.
Please let us know via [email protected] if you have booked for the Friday evening or Sunday evening. Although we cannot guarantee the same room on Saturday, we will do our best to accomodate this.
Please note that the event begins on Saturday therefore there will be no charity presence or charity activities on the Friday evening.
This event brings together individuals, families, and professionals from the Huntington’s community to hear from expert speakers, share experiences, and learn more about care, support, and research.
For 2026, we will be returning to the beautiful Crewe Hall.
Event overview
Saturday 7 November 2026
We will be joined by a number of well-renowned speakers in the Huntington's community, with extensive knowledge of care, support, and research including:
Cath Stanley BEM, Chief Executive of the Huntington's Disease Association with an overview of 2025/2026 and talking about future plans for the year ahead.
Professor Hugh Rickards, Neuropsychiatrist and Chair of the Huntington's Disease Association leading the Annual General Meeting, which includes the appointment of trustees, auditors, and a financial update by our Treasurer, Nick Heath.
Professor Anne Rosser, Professor of Clinical Neuroscience, Division of Psychological Medicine and Clinical Neurosciences, Cardiff University providing an overview of current and upcoming Huntington's research.
Some of our Huntington's Ambassadors sharing their personal perspectives.
Uruj Anjum, Psychotherapist, Lecturer, Supervisor, Founder of Saiyna Therapy and Donna-Maria Dodson, Psychotherapeutic Counsellor and Supervisor, Saiyna Therapy exploring the emotional impact of Huntington's disease when relationships change.
Children and young people attending (up to 17 years) will have the option to join off-site activities with our Specialist Youth Engagement team. In previous years, these have included activities such as bowling, laser quest, escape rooms and theme parks.
In the evening, we will join together for a three course dinner which will take place in Crewe Hall's spectacular Long Gallery which dates back to Jacobean times.
Sunday 8 November 2026
We will be running smaller, more interactive workshops that you can choose from. Including topics such as:
Relaxation techniques
Reflexology
Emerging therapies
Palliative care
Children and young people will join our Specialist Youth Workers for further activities on-site. In previous years, these have included swimming, a film morning, and arts and crafts.
Please note: an adult over the age of 18 must be attending to purchase a child's ticket.
Who should attend
This event is open to anyone affected by Huntington’s disease, including:
Individuals living with the condition
Family members and carers
Friends
Professionals working in health and social care
Booking information
Bookings for the conference must be made through the Huntington’s Disease Association. They are not available through the hotel directly.
A range of ticket types are available via Eventbrite, allowing you to attend for the full weekend or for a single day.
After selecting your ticket, you will be asked to provide additional information, including:
Room preferences
Accessibility requirements
Dietary requirements
If the available ticket options do not meet your needs (for example, if you require additional travel or accommodation), or if you need support with your booking, please contact:
Telephone: 0151 331 5444 (press option 4)
Email: [email protected]
Where possible, alternative arrangements will be considered.
If you wish to stay over on Friday night or Sunday night, we have negotiated a special rate with the hotel, please call the reservations team at Crewe Hall on 03301071599. Let them know you are attending the Huntington's disease Community Conference and AGM to receive 20% off room prices.
Please let us know via [email protected] if you have booked for the Friday evening or Sunday evening. Although we cannot guarantee the same room on Saturday, we will do our best to accomodate this.
Please note that the event begins on Saturday therefore there will be no charity presence or charity activities on the Friday evening.
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Where is it happening?
Crewe Hall Hotel, Weston Rd, Haslington, Crewe CW1 6UZ, Crewe Hall, Crewe, CW1 6, United Kingdom
Event Location & Nearby Stays:
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Host or PublisherHuntington's Disease Association
