GFPD Northeast Regional Meetup
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Join the GFPD August 21-23, 2026, for our Northeast Regional Meetup, an in-person gathering designed to connect families, caregivers, researchers, and professionals impacted by peroxisomal disorders. These meetups help reduce isolation, provide education, and create meaningful opportunities to build community—because no family should navigate a rare disease alone. Keep reading below to learn more!
👥 WHO SHOULD ATTEND?
• GFPD Warriors
• Families and Caregivers
• GFPD Medical & Scientific Advisors
• Advocates and Professionals
Whether you’re newly diagnosed or a longtime community member, this event is designed to support connection, education, and shared experience.
📍 LOCATION 📍
Embassy Suites by Hilton Newark Wilmington South
654 South College Avenue
Newark, Delaware, 19713, USA
*The GFPD has secured a discounted room block at $165.00/night for attendees.
📣 To receive this rate, you will receive a specific hotel reservation link after registering for the meetup via the GFPD registration link.
Guests booking within the GFPD block receive the discounted rate, complimentary parking, free breakfast, Wi-Fi, and access to the evening reception.
🚗 TRAVEL STIPENDS
To help reduce financial barriers, the GFPD offers limited travel stipends for families, including bereaved families, who need assistance attending. Stipends may be used toward travel-related expenses, including mileage/gas, lodging, or other associated costs with attending this meetup.
🎟️REGISTER HERE: https://wkf.ms/4oGMcKW
➡️ TO LEARN MORE ABOUT MEETUPS VISIT HERE: https://thegfpd.org/regional-meetups/
❓QUESTIONS❓
For any questions about the meetup, registration, or travel stipends, please reach out to:
• Katie Sacra, Director of Family and Community Engagement at [email protected]
• Ryan Maple, Executive Director at [email protected]
Sponsorship or donation inquiries to support meetups should be directed to Kevin Johnson, Partnership Advisor at [email protected]
👥 WHO SHOULD ATTEND?
• GFPD Warriors
• Families and Caregivers
• GFPD Medical & Scientific Advisors
• Advocates and Professionals
Whether you’re newly diagnosed or a longtime community member, this event is designed to support connection, education, and shared experience.
📍 LOCATION 📍
Embassy Suites by Hilton Newark Wilmington South
654 South College Avenue
Newark, Delaware, 19713, USA
*The GFPD has secured a discounted room block at $165.00/night for attendees.
📣 To receive this rate, you will receive a specific hotel reservation link after registering for the meetup via the GFPD registration link.
Guests booking within the GFPD block receive the discounted rate, complimentary parking, free breakfast, Wi-Fi, and access to the evening reception.
🚗 TRAVEL STIPENDS
To help reduce financial barriers, the GFPD offers limited travel stipends for families, including bereaved families, who need assistance attending. Stipends may be used toward travel-related expenses, including mileage/gas, lodging, or other associated costs with attending this meetup.
🎟️REGISTER HERE: https://wkf.ms/4oGMcKW
➡️ TO LEARN MORE ABOUT MEETUPS VISIT HERE: https://thegfpd.org/regional-meetups/
❓QUESTIONS❓
For any questions about the meetup, registration, or travel stipends, please reach out to:
• Katie Sacra, Director of Family and Community Engagement at [email protected]
• Ryan Maple, Executive Director at [email protected]
Sponsorship or donation inquiries to support meetups should be directed to Kevin Johnson, Partnership Advisor at [email protected]
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Where is it happening?
Newark, Delaware, United States
Event Location & Nearby Stays:
Know what’s Happening Next — before everyone else does.
Host or PublisherThe Global Foundation for Peroxisomal Disorders
