Community impact night for Isaiah

Name: Community impact night for Isaiah
Start: 2026-05-19T16:00:00-05:00
Location: 3116 Floyd Blvd, Sioux City, IA

Schedule

Tue, 19 May, 2026 at 04:00 pm

UTC-05:00

Location

3116 Floyd Blvd, Sioux City, IA | Sioux City, IA

Isaiah is my four-year-old great nephew. Two years ago, not quite a month after his second birthday, Isaiah was diagnosed with Rhabdomyosarcoma in his chest wall. Upon this diagnosis, genetic testing was performed and it was discovered that Isaiah has Li-Fraumeni syndrome. Isaiah, his mom and his one-year-old younger brother were living in Florida at the time. The Children’s Hospital in his city decided to test Isaiah’s mom and brother. They were both diagnosed with Li-Fraumeni syndrome. The syndrome makes treatment of cancer difficult. It was determined that Isaiah should not receive radiation at the time. He started receiving weekly chemotherapy in January 2024. This continued until late November 2024.
While Isaiah was undergoing treatment, his mom, Kylie, and his little brother, DeAndre, began testing for cancers that could be caused by their genetic disorder. Luckily, Kylie and Dre, have continued to test clear throughout their regular scheduled cancer screenings. All three will need to be screened for the entirety of their lives. Upon completion of Isaiah‘s chemotherapy regimen, the family moved back to Iowa to be closer to extended family.
Isaiah‘s first three month screening was in March 2025. His cancer had returned in the same spot as before. At this time, Isaiah was under the treatment of Children’s Hospital in Omaha in conjunction with the Mayo Clinic in Rochester. Once again, Isaiah began receiving weekly chemotherapy treatments in April after undergoing surgery to remove as much of the mass as possible. Isaiah was sent to the Mayo Clinic in August to undergo five weeks of daily radiation. During this time, he continued to receive his weekly chemotherapy. Isaiah finished treatment in late October. His first scans last month showed a few lit up spots that the doctors believe to be scar tissue at this time, but will warrant a close watch.
While undergoing this testing, it was discovered that Isaiah has Chiari malformation, a hereditary brain condition. This little superhero has continued to inspire everyone around him with his happy go lucky attitude. He is beyond excited to start school in January 2026. Isaiah has not been allowed to go to daycare due to the fact that he has been immuno-compromised for the last two years. Kylie is a single mom who works diligently to provide for her two boys. She has overcome so many things to get to where she is at today. She is hoping to return to work full-time in January. DeAndre is his brother‘s best friend and a constant source of entertainment for all of us.