Cameron & Gabe's Run for a Cure

🎯 Event Purpose

• Raise funds to support SLC6A1 gene therapy access and research

• Increase awareness of rare genetic disorders

• Bring the community together for families affected by SLC6A1

• Honor children fighting this disorder every day

*** Please note that Superhero costumes are encouraged.

About the Cause

SLC6A1 is a rare genetic neurological disorder that causes epilepsy, developmental delays, movement disorders, and significant challenges for affected children and their families. Until recently, there was no cure, only symptom management.

In September 2025, a major breakthrough occurred:

👉 The first gene therapy for SLC6A1 was successfully developed.

This milestone means a cure now exists, but it is not yet accessible to most families. Significant funding is still needed to:

• Expand clinical trials

• Support regulatory approval

• Scale production

• Ensure children worldwide can access treatment, not just a few

This event is about turning hope into reality by helping bridge the gap between scientific discovery and real-world access.

This is a family-friendly event welcoming runners, walkers, children, and supporters of all ages.

🎁 In-Kind Donations Welcome

Food, water, kids’ activities, printing, signage, raffle items, and other goods or services are gratefully accepted and recognized at equivalent sponsorship levels.

📣 Why Participate or Sponsor?

• Help bring a life-changing cure to children who need it

• Support families navigating a rare genetic diagnosis

• Demonstrate community leadership and compassion

• Be part of a historic moment in rare disease treatment

📞 Get Involved

Katie Sharp

📧 [email protected]

📱 423-320-4792

Together, we can ensure that a cure doesn’t stop at the lab — it reaches every child who needs it. 💜

Know what’s Happening Next — before everyone else does.

Get App

Host or Publisher SLC6A1 Connect