Alport Connect 2025 - Chicagoland (In-Person Only Event)

Click the orange "Select Tickets" button to receive your free Alport Connect 2025 weekend ticket(s) for all Saturday, July 19th and Sunday, July 20th activities at the HIlton Chicago/Oak Brook Hills Resort & Conference Center.

Alport Connect 2025 is in-person only and tickets are limited. We advise reserving your ticket(s) early! However, if your plans change and you are unable to attend, please notify [email protected] so that we can release your spot to other patients/family members.

If reserving more than one ticket, please answer the registration questions uniquely for each individual attending. Individual names are required for each registration. Individual email addresses for each are helpful. Knowing who is attending helps us plan a more successful event. Individual email addresses for minors is not required at registration.

Please note that required contact information for Teen Program registrants is solely for event communications. This information will not be kept on file after the event, nor will Teens be contacted for any non-event purposes.

Alport Connect 2025 includes two simultaneous program tracks:

1) Adult Program (patients and family members ages 20 and up)

2) Teen Program for individuals ages 13-16 (inclusive) and ages 17-19 (inclusive).

All programs will be facilitated by medical professionals and trained patient volunteers.

As space is limited, we can accommodate up to one unaffected sibling ages 13 - 19 in the teen program.

Alport Connect 2025 will not include virtual participation.

Partial travel reimbursements are not yet available. We hope to secure funding for this option as soon as possible, and offer on a first-come, first-served basis to all registered guests. ASF will reach out directly to guests as funding becomes available.

Alport Connect 2025 is a unique opportunity to interact with medical professionals who have expertise in our rare disease, researchers, and with other Alport syndrome patients/families from across the country. It will be a weekend of learning, connecting, and socializing as a community of patients and families. You'll leave the weekend-long event feeling empowered with knowledge and supported by new friends in the extended Alport community.

Whether you are newly diagnosed or a patient/caregiver with a long history and journey with Alport syndrome, there is a place and purpose for you at Alport Connect 2025.

Testimonials from last year's Alport Connect attendees:

"I'm so thankful for this space. To meet other patients/parents and hear all the experts has been so valuable."

"Our first time here and couldn't be happier with the social experience and education. Thank you!"

"We are all in this together...To hear the variety of doctors, clinical trials, genetic testing and so many individuals working together for our community brings me a sense of peace and comfort."

"Thank you for putting this conference together it is great to know there is information/support for myself and my child."

COVID Policy for Alport Connect 2025

By registering for Alport Connect 2025, you acknowledge that Alport Syndrome Foundation reserves the right to implement COVID safety precautions based on the health climate at the time of the event, including, but not limited to, an indoor mask policy.

In the interest of everyone's health, we respectfully request that individuals experiencing COVID-19 symptoms or other illnesses please refrain from attending.

Lodging Information

Click here to view our Logding Overview document.

Event Parking

FREE, self-parking is available at the hotel patrons and visitors. We will provide rideshare information and directions to the meeting space as the event gets closer.

Host or Publisher Alport Syndrome Foundation