2026 New Brunswick Patient and Family Conference
About this Event
2026 Conferences
Who should attend?
- Aplastic anemia Aplastic anemia: (ay-PLASS-tik uh-NEE_mee-uh) A rare and serious condition in which the bone marrow fails to make enough blood cells - red blood cells, white blood cells, and platelets. The term aplastic is a Greek word meaning not to form. Anemia is a condition that happens when red blood cell count is low. Most…, PNH, MDS, MPN, and AML patients
- Those who are newly diagnosed or currently in treatment, as well as long-term survivors
- Caregivers, family members or friends
- Nurses and other healthcare professionals are also welcome
Why should you attend?
- Gain unprecedented access to top experts
- Get your questions answered
- Return home a wiser and better-equipped self-advocate
- Meet those who genuinely understand what you are going through
- Build a strong and supportive community
- Leave with a sense of optimism and hope for the future
- Mark your calendars now. Advance registration is always recommended.
What to Expect from AAMDSIF Conferences:
- An in-depth review of the current thinking on aplastic anemia, PNH, MDS, MPN, and AML.
- Practical steps you can take to become an even stronger advocate for your best care and treatment.
- Practical strategies for improving your health and well-being in spite of your illness.
- Meet other patients and family members, join a Community Connection group in your area and discover our Peer Support Network.
- Learn how AAMDSIF can help you with this life-altering journey.
Need Help?
If you have questions regarding our conferences or registration, please call our conference information line at 301-279-7202 x 128 or email us at [email protected]
Agenda
🕑: 07:30 AM - 03:30 PM
CONFERENCE AGENDA - July 25, 2026 (Eastern Time Zone)
Info: Aplastic Anemia/PNH Agenda
8:00 - 8:45 Breakfast and Registration
8:45 - 9:15 Welcome
9:15 – 9:45 Bone Marrow Failure
10:00 - 10:30 Treatment and Management of Aplastic Anemia
10:30 - 11:00 Treatment and Management of PNH
11:15 – 12:00 Ask the Experts Panel AA/PNH (Q & A)
12:00 – 12:30 Lunch
12:30 – 1:15 Transplant Decision Making – Is a transplant right for me?
1:30 – 2:15 Living Well Session
2:15 - 3:00 Patient Panel – Let’s Talk Survivorship
*Agenda is subject to change
MDS/AML/MPN Agenda
8:00 - 8:45 Breakfast and Registration
8:45 - 9:15 Welcome
9:15 – 9:45 Bone Marrow Failure
10:00 – 11:15 Treatment and Management of MDS: Lower Risk, Higher Risk, AML and MDS/MPN Overlap
11:30 – 12:00 Ask the Experts Panel MDS/AML/MPN (Q & A)
12:00- 12:30 Lunch
12:30 – 1:15 Transplant Decision Making– Is a Transplant right for me?
1:30 – 2:15 Living Well Session
2:15 - 3:00 Patient Panel – Let’s Talk Survivorship
* Agenda is subject
Where is it happening?
Event Location & Nearby Stays:
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