Who Owns Data? Public Voices, Power and Innovation

Description

A Symposium to think critically about the use of data, and how we balance innovation in data-intensive research with public trust, accountability, and evolving public opinion.

Lunch is provided.

Venue

In person - Leolin Price Lecture Theatre, UCL Great Ormond Street Institute of Child Health.

Target audience

• Students and researchers in data science with interest in ethics (in collaboration with the Bioethics Society)

• Users of linked administrative and health data, and methodologists working in linkage, governance and infrastructure (including members of the ITALO and SPRINT networks, and DARE UK–funded communities)

Proposed outcome
Participants will leave with clearer language and a practical framework for talking about “who owns data”, along with concrete ideas for how to embed public voices into data governance and project design, so they can better justify, adapt and communicate their data practices in ethically robust, socially responsive ways.

Organisers

Jo Lam (UCL GOS ICH), Miranda Leung (UCL Bioethics Society), Aaron Koay (The UCL Critical Global Health Network), Catherine Stewart (UCL GOS ICH).

Funding

This symposium is funded partly by Research England's Higher Education Innovation Fund (HEIF), managed by UCL Innovation & Enterprise, and partly funded by Health Data Research UK, Data and Analytics Research Environments UK, UK Research and Innovation - Digital Research Infrastructure (DRI) Fund.

Collaborators

Health Equity Special Interest Group, Improving Transparency Around Linkage Outputs (ITALO, DARE UK interest group), Single Patient Record Integrity, Transparency and Trust (SPRINT DARE UK working group), UCL Bioethics Society, The UCL Critical Global Health Day, Mind and Society Network.

If you have any questions, please contact Jo Lam - [email protected].

Info: Lunch is provided

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Host or Publisher UCL Institute of Child Health