Understanding the Genetics of Ehlers-Danlos Syndrome

Name: Understanding the Genetics of Ehlers-Danlos Syndrome
Start: 2026-01-18T13:00:00-08:00
End: 2026-01-18T15:00:00-08:00
Location: EvergreenHealth Medical Center (Tan 100) 12040 Northeast 128th StreetKirkland, WA, 98034

Schedule

Sun Jan 18 2026 at 01:00 pm to 03:00 pm

UTC-08:00

Location

EvergreenHealth Medical Center (Tan 100) 12040 Northeast 128th StreetKirkland, WA, 98034 | Kirkland, WA

Please note that the doors to the Tan building are locked on the weekends. Use the Central entrance, go to the first floor, and take the tunnel across to the Tan building.
Join Emily Hasser for an insightful class exploring the complex genetics behind Ehlers-Danlos Syndrome (EDS). This session will provide a clear overview of the different types of EDS and their associated genes, the role of genetics in diagnosis, and the latest emerging research on hEDS.
Emily will also guide participants through how to access reputable genetic testing, interpret possible testing results, and understand ethical considerations such as eugenics and protections against genetic discrimination. The class will conclude with a brief, evidence-based overview of MTHFR and hereditary alpha tryptasemia (HαT)—what we do and don’t yet know.
Whether you’re a patient, provider, or caregiver, this session will equip you with a deeper understanding of how genetics shapes the EDS journey—and what that means for the future of care and research.

Where is it happening?

EvergreenHealth Medical Center (Tan 100) 12040 Northeast 128th StreetKirkland, WA, 98034, Evergreenhealth Medical Center Kirkland-ER, 12040 NE 128th St, Kirkland, WA 98034, United States

Event Location & Nearby Stays: