Team Lukie 5K Walk/Run for ZTTK
Schedule
Sat Sep 21 2024 at 10:00 am to 12:00 pm
UTC-04:00Location
Castle Island Playground - South Boston, Ma | Boston, MA
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In 2023, Baby Lukie was diagnosed with a rare, neurodevelopment disorder called ZTTK. Discovered only in 2016, there are no known cures or treatments.At 2 years old, Lukie’s journey is filled with immense hurdles. He relies on a feeding tube and has yet to crawl, walk, or speak... Despite these obstacles, he amazes us with resilience, joy, and courage every day.
🧪We are racing against the clock to work with dedicated scientists, and the ZTTK SON-Shine Foundation to develop a cure for Lukie and other ZTTK patients.
💰 To raise awareness and funds for research, we have organized a 5K for ZTTK Walk during the ZTTK Awareness Month in September! Join us!
🚀 Support here: https://givebutter.com/5kforzttk/team-lukie/adalio !
☀️When? 9/21/2024 10am-12pm!
🩷Where? Castle Island Playground, South Boston (2010 William J Day Blvd, Boston, MA 02127)
💪 What? Interested folks can walk/run/bike/roller-blade around Castle Island/Pleasure Bay Loop. We will also celebrate together with lunch ~11am at Sullivan's!
Trail map: https://www.mass.gov/doc/castle-island-trail-map/download
Sullivan's (lunch!): https://www.sullivanscastleisland.com/
Join us for a pre-5K on 9/14 (Sat) 5-7pm @Aeronaut Allston / pick up race T-shirts here: https://www.facebook.com/share/1reYnPa9cy7UA1f7/
Even a simple share goes a long way! Thank you. #CureZTTK
Warmly,
Ada, Nathan, and Lukie
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Where is it happening?
Castle Island Playground - South Boston, Ma, Boston, United StatesEvent Location & Nearby Stays:
