TBCK Conference 2026: Snowflakes in July

Welcome to the TBCK Conference 2026: Snowflakes in July!

Get ready for an unforgettable in-person experience where things get cool even in the summer! Mix, mingle, and dive into fascinating talks about TBCK Syndrome and share the realities of rare disease life. It's the perfect spot to connect with friends old and new, all while enjoying the unique vibe of TBCK Snowflakes in July. Like snowflakes, our TBCK Warriors are each entirely unique. We celebrate them while we gather to together to find answers, accelerate patient-led research, advocacy, education, and create a dynamic system of support.

We will end our time together with the Black Ties for Rare Gala dressed in our best to celebrate rare disease. Don't miss out on the fun – see you there!

When you register and buy tickets, you will also have an opportunity to explore ways to become a Sponsor for the events, order t-shirts (deadline June 15, 2026), and/or donate to our Ready for Research Initiative!

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Host or Publisher The TBCK Foundation