Sickle Cell Fall Symposium

Join us for our Sickle Cell Symposium to learn more about the latest treatments and therapies available. This family friendly event includes breakout sessions and opportunities to learn from others in the community who are experiencing many of the same everyday challenges. Lunch, snacks and drinks will be provided.

• Welcome: 15-30 minutes
• Session 1: 35-45 minutes
  Topics: Hydroxyurea, Endari, Voxelotor, Criziluzimab (Disease modifying therapies)
• Session 2: 45-60 minutes
  Topic: Gene therapy and transplant (Guest Speaker: Dr. C or Dr. Alicea)
• Session 3: 35-45 minutes
  Topic: Blood transfusion (Guest Speaker: Dr. Josephson)
• Lunch with Invited Lecturer: 45-60 minutes
  Guest Lecturer: Dr. Reynoso
• Panel Discussion:
  1:30-2:30 pm (Transition from pediatric to adult care)

• Parent of previously graduated teen
• 2 Teens (13-15 yrs), (19-20 yrs)
• 1-2 recently graduated adults (Marquita Miller, Christian Walker, or Jamira Jackson)
• Adult Provider: Dr. Makani

Tables 10:00-2PM

• Registration and information
• EventBrite page needed

Tables from 1:30-3:00 pm:

• HLA kits for families/siblings (Kristen/Joanna)
• Child life activities (Aflac Duck and books)
• Sickle Cell Disease Association of America (SCDAA)
• Education table (504/IEP), SPCC, Psychology (Neuropsych) - Dr. Hess/Lori
• Eat to Thrive
• Children’s Dream Fund
• Children’s Cancer Center

• AM Coffee catered in house, present at start of event
• Boxed lunches catered in-house
• PM Coffee and cookies catered in-house

Host or Publisher Johns Hopkins All Children’s and JHU