Precision Medicine for Genetically Defined Ehlers-Danlos Syndromes
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The Ehlers-Danlos Society is delighted to be hosting the Precision Medicine for Genetically Defined Ehlers-Danlos Syndromes event, taking place on September 3-4, 2026, in Ghent, Belgium. This is a hybrid event that can be viewed from anywhere in the world, in over 60+ languages.
This event is for healthcare professionals, researchers, scientists, patient representatives, and policy-makers
The Ehlers-Danlos Syndromes (EDS) are a group of rare, heritable connective tissue disorders that affect the body in many ways. While most types of EDS are linked to genetic changes, the mechanisms that link these changes to phenotypic outcomes remain poorly understood.
Individuals with the same diagnosis can present differently, presenting significant challenges for diagnosis, treatment, and management.
Traditional “one-size-fits-all” approaches do not address the complexity experienced by those with the Ehlers-Danlos syndromes. Precision medicine—care tailored to genetic, biological, and personal factors—offers hope for more effective management strategies.
For conditions such as the Ehlers-Danlos syndromes, advancing precision medicine requires foundational research, and international collaboration is crucial.
This global networking event will bring together clinicians, established and early-career scientists, patient representatives, policymakers, and other key stakeholders to advance collective understanding and action in genetically defined types of EDS.
Through multidisciplinary collaboration and elevating patient voices to reflect lived experience, we aim to create a shared roadmap for advancing precision medicine in EDS.
https://www.ehlers-danlos.com/precision-medicine-for-genetically-defined-ehlers-danlos-syndromes/
This event is for healthcare professionals, researchers, scientists, patient representatives, and policy-makers
The Ehlers-Danlos Syndromes (EDS) are a group of rare, heritable connective tissue disorders that affect the body in many ways. While most types of EDS are linked to genetic changes, the mechanisms that link these changes to phenotypic outcomes remain poorly understood.
Individuals with the same diagnosis can present differently, presenting significant challenges for diagnosis, treatment, and management.
Traditional “one-size-fits-all” approaches do not address the complexity experienced by those with the Ehlers-Danlos syndromes. Precision medicine—care tailored to genetic, biological, and personal factors—offers hope for more effective management strategies.
For conditions such as the Ehlers-Danlos syndromes, advancing precision medicine requires foundational research, and international collaboration is crucial.
This global networking event will bring together clinicians, established and early-career scientists, patient representatives, policymakers, and other key stakeholders to advance collective understanding and action in genetically defined types of EDS.
Through multidisciplinary collaboration and elevating patient voices to reflect lived experience, we aim to create a shared roadmap for advancing precision medicine in EDS.
https://www.ehlers-danlos.com/precision-medicine-for-genetically-defined-ehlers-danlos-syndromes/
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Where is it happening?
Hotel Monasterium, Gent, Belgium
Event Location & Nearby Stays:
Know what’s Happening Next — before everyone else does.
Host or PublisherThe Ehlers-Danlos Society
