National Information Day for those living with Nephrotic Syndrome

Please note this day is for both adults living with Nephrotic Syndrome as well as parents and carers of children with Nephrotic Syndrome.

Children are welcome! (children need to have a ticket,so we know numbers for catering).

Important:Please kindly email me [email protected] with any dietary requirements for you and any members of your family in advance.(I need at least two weeks notice for caterers).

Children up to the age of 16 will receive a tote bag with a cuddly toy and activity books on arrival. Please kindly email your childrens names,ages and gender making sure its age appriopriate etc.. so I can make up tote bags in advance by the 2nd of March please so I have time to purchase , pack and post to the Manchester team beforehand as I travelling up by train mid -week.

Free lunch and refreshments

Please kindly email me [email protected] to let me know any dietery requirements needed on the day.

Registration at 10am. Important please register in advance so we can comfortably accommodate everyone and have accurate numbers for catering.

The day will begin with registration at 10.30 am and finish approximately 3.30PM. We are putting together an exciting programme which is soon to be released which will include talks from both a peadiatric nephrologist and an adult nephrologist;both genetic and idiopathic nephrotic syndrome research.Dietician and psychologists will be attending too.

If you do book tickets and find that nearer the time, or on the day you cannot attend please do be courteous and let me know so it enables someone to take your place and of course food and money are not wasted.

I do hope you enjoy the day!

Best Wishes,

Wendy Cook

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Host or Publisher Wendy Cook, Director of Nephrotic Syndrome Trust(NeST) & Dr.Ania Koziell