IRSF RettEd Day with Boston Children's Hospital

Name: IRSF RettEd Day with Boston Children's Hospital
Start: 2025-09-13T09:00:00-04:00
Location: Boston Childrens Hospital

Schedule

Sat, 13 Sep, 2025 at 09:00 am

UTC-04:00

Location

Boston Childrens Hospital | Boston, MA

Learn More & Register: https://rettsyndrome.org/retted-bch25
Our RettEd Days are for everyone wanting to connect with experts in the field of Rett syndrome especially families, caregivers, educators, clinicians, and therapists. Participants will enjoy a rich and informative day of topics and discussions covering BCH Comprehensive Rett Syndrome Clinic updates, IRSF updates, clinical research and gene therapy, epilepsy and movement disorders in Rett, GI/nutrition, communication, community resources, a parent panel and more.
Saturday, September 13, 2025
9:00 a.m. – 5:00 p.m. ET
Boston Children's Hospital (1 Autumn Street)
Fee: $10/per person
FREE for individuals with Rett syndrome and children 12 & under.
Thank you to our sponsors, Acadia Pharmaceuticals, Neurogene & Taysha Gene Therapies for helping IRSF provide educational resources and support to families affected by Rett syndrome.