Henry's Village Event

Henry, a local 4 year old Vermonter has AHC- a rare, neurodegenerative disorder which causes life threatening symptoms of seizures, difficulty breathing, and paralysis near daily. His parents created a non-profit For Henry AHC to fund and develop an ASO treatment for Henry with Boston Children's hospital. They are halfway there in raising the full $3M needed before Henry can be treated in a year.

In an effort to raise funds and awareness for Henry, a group of iconic Vermont companies has rallied around him to create Henry’s Village. Vermont Teddy Bear generously created a four foot Henry Bear who has been dressed and accessorized by iconic Vermont brands including: Orvis, The Vermont Flannel Co., Johnson Woolen Mill, Skida, Darn Tough, Commando, DandyLion, Simon Pearce, Danforth, Field Company, Vermont Butcher Block, Stephanie Grace Ceramics, Queen City Dry Goods, and 4T2D. This Henry Bear serves as the mascot for Henry’s Village and has inspired other local businesses to support Henry through roundups at City Market Coop and Jersey Mike’s, flower and reusable bag donations at Hannaford, and through featuring a Henry themed Smoothie at Ecobean.

For Henry AHC is hosting a dinner on August 10th at Snowfarm Vineyard in South Hero from 6-9pm to celebrate Henry’s Village.

This dinner will be provided by favorite Vermont food and beverage sponsors, including Snowfarm Vineyard, Zero Gravity, Whiskey Pig, Jasper Hill Farm, Ben and Jerry’s, Cold Hollow Cider Mill, American Flatbread, Pizzeria Veritas, Ecobean, and Roll Away Cafe. The event will include a complimentary beer or wine, an auction, concert from Kat Wright and her band, flowers from June Farm, and professional photography by Colette Kulig.

All current and prospective members of Henry’s Village are encouraged to support Henry through attending our event or purchasing an "I can't make it, but wish I could!" ticket, raising awareness on social media and newsletters, offering employee charitable matches, donating auction or gift bag items, making a corporate charitable donation, and sharing our story with the media. The impact of Henry’s village reaches far beyond Henry, in supporting his historic treatment which will change many lives.

Host or Publisher For Henry AHC