Enduring Symptoms: From patient voices to solution-driven care

This one-day conference will bring together leading voices from healthcare, academia, policy, and lived experience to explore the complex challenges of enduring symptoms and the opportunities for meaningful change. Through expert presentations, practical insights, and thought-provoking discussion, the programme will examine current understanding, highlight gaps in care, and showcase innovative approaches that can improve outcomes for patients. Attendees will leave with fresh perspectives, greater awareness, and actionable ideas to help shape more compassionate, evidence-based, and solution-driven care.

The topics to be include are:

• The size and diversity of enduring symtptoms and why the problem is challenging
• Models of care generally do not serve patients with enduring symptoms
• A practical guide to managing patients with complex and challenfing symptoms
• A conversation between a doctor and patient both with anti-phospholipid syndrome
• Jess's Rule, will this make a difference
• The importance of patient stories- an underused resorce in scientific research
• Where does the patient journey go wrong
• The importance of acknowledging and making diagnostic doubt visable
• Enduring symptoms- The psychiatrist's view
• The Dutch experience of enduring symptoms
• Enduring symptoms in A&E
• Is genetic testing the answer
• The woman's voice
• Are specialist clinics the answer
• The challenge of terminology in enduring symptoms
• Health Economic aspects of enduring symptoms

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Host or Publisher Forgotten Patients, Overlooked diseases