Champions for a Cure Gala

Name: Champions for a Cure Gala
Start: 2024-06-29T18:00:00-06:00
End: 2024-06-29T22:00:00-06:00
Location: Little America Hotel

Schedule

Sat Jun 29 2024 at 06:00 pm to 10:00 pm

UTC-06:00

Location

Little America Hotel | Salt Lake City, UT

The 2024 CCDS Scientific + Patient Symposium culminates with a special celebration for our community. Plan to join us for a fun and elegant evening of entertainment, delicious food and drinks, and a special awards ceremony. All dress codes are welcome—from black tie to business casual to kids dressed for comfort.
Symposium registration includes one gala ticket. CCDS family registration includes one gala ticket per person in the household. Additional gala tickets may be purchased separately.
Visit https://creatineinfo.org/GALA/ to reserve your ticket and learn more.
WHO: Attendees will be from our patient community, CCDS research, clinical care, government policy and the pharmaceutical industry.
WHY: Proceeds of the Champions for a Cure Gala will benefit Association for Creatine Deficiencies to support education, newborn screening and diagnostic advocacy, family support and research for Cerebral Creatine Deficiency Syndromes.
ABOUT CEREBRAL CREATINE DEFICIENCY SYNDROMES: Creatine deficiencies account for an estimated 3.5% of all cases of undiagnosed cognitive disability and autism Every day without adequate creatine is a day lost in the fight against brain damage, muscular loss, developmental delays and seizures. On average, it takes 1.9 years for families to get a diagnosis. If diagnosed at birth, 2 of the 3 creatine deficiencies can be treated and patients can experience typical growth and development.