Advancing Rare Together - A Night at the Museum with Rare New England

Event Details

Rare New England invites you to be part of something truly meaningful in 2026. On April 18, 2026, from 5:00–7:30 PM at the Boston Museum of Science, we are proud to present:

Advancing Rare Together – A Night at the Museum with Rare New England

This one-of-a-kind fundraising event will bring together patients, families, healthcare providers, researchers, advocates, and community leaders for an unforgettable evening of inspiration, innovation, and impact.

Guests will experience a powerful rare disease exhibit, showcasing cutting-edge projects, creative presentations, and personal stories that shine a light on the challenges and breakthroughs within the rare disease space. With interactive and engaging displays submitted by students, healthcare professionals, and advocacy groups, the evening promises to educate, inspire, and spark collaboration.

✨ Why It Matters:

• 1 in 10 people live with a rare or complex medical condition—over 30 million Americans.
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• Many face long diagnostic journeys, limited treatment options, and gaps in support.
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• Together, we can accelerate awareness, innovation, and hope for families impacted by rare disease.

This evening is more than a fundraiser—it’s a chance to stand with families, celebrate resilience, and advance rare disease awareness in a way that has never been done before.

We’re inviting researchers, healthcare professionals, advocacy groups, and students to showcase creative and educational projects in the rare disease space. Submissions should raise awareness, be accessible and accurate, and focus on a specific topic or theme, with interactive or engaging elements encouraged. This is your chance to bring rare diseases into the spotlight and help the public understand the challenges and impact on those affected.

✨ Your Impact as a Sponsor:

By sponsoring this event, you directly support Rare New England’s mission to provide education, advocacy, and patient-centered programs throughout New England. You’ll also gain visibility at a prestigious venue, align your brand with a cause rooted in compassion and equity, and demonstrate your commitment to strengthening community health.

📍 Event Location:

Boston Museum of Science

1 Science Park, Boston, MA 02114

For sponsorship opportunities, project submissions, or more details, please contact: [email protected]

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Host or Publisher Rare New England