A night of music and a lifetime of memories

Name: A night of music and a lifetime of memories
Start: 2026-05-21T19:00:00+01:00
Location: Drumhierny Woodland Hideaway

Schedule

Thu, 21 May, 2026 at 07:00 pm

UTC+01:00

Location

Drumhierny Woodland Hideaway | Sligo, SO

Rosemary is a bright and joyful 9-year-old girl who has already faced more challenges than most. She was born with extra toes on both feet, and in February 2023, she was diagnosed with an arachnoid cyst on her brain. Since then, she has undergone six brain surgeries, including the placement of a VP shunt that she will rely on for life.
In May 2023, Rosemary was also diagnosed with Bardet-Biedl Syndrome (BBS), a rare genetic condition that affects multiple aspects of her health. As a result, Rosemary experiences speech delay, learning difficulties, obesity, muscle weakness, ongoing ear infections, and retinitis pigmentosa (RP), which causes night blindness and progressive vision loss.
Sadly, Rosemary has already lost her night vision and much of her peripheral vision. At present, she has 6/18 tunnel vision, and her sight continues to deteriorate.
Because of this, we want to create a lifetime of special memories for Rosemary—moments filled with joy, adventure, and love that she can cherish.
Despite everything she faces, Rosemary remains a beautiful, happy little girl, full of love and laughter, always greeting everyone with a smile.
Thank you for supporting Rosemary and her family. We hope you can join us for a day of music, fun, and laughter as we come together to make a difference in her life.