2026 Myositis Moon Walk

2026 Myositis Moon Walk

Join Myositis Support & Understanding (MSU) & The Three Myositis Musketeers for an inspiring two-day event dedicated to community, awareness, and progress in Myositis care.

May 1st— Moonlight Beneath Saturn V: A Rocketside Dinner (Sponsored by IV Solutions Rx)
Gather in the awe-inspiring Saturn V Hall at the Davidson Center for an unforgettable opening night beneath the engines that carried humanity to the moon. Enjoy live music by The Prevailing Winds Flute Ensemble, expert insights from Dr. Lisa Christopher‑Stine (Johns Hopkins), and moving patient stories that illustrate the heart of our mission. This special dinner launches the Moon Walk weekend with connection, hope, and purpose.

May 2nd — Myositis Moon Walk & Day of Impact (Breakfast Sponsored by Priovant)
Start the day with a community breakfast sponsored by Priovant, then join us at the U.S. Space & Rocket Center for the Myositis Moon Walk — a full day of education, advocacy, and fellowship. Walk alongside patients, caregivers, families, and friends; attend expert-led sessions and panels; meet clinicians, researchers, and advocates; and participate in onsite activities designed to inform and inspire.

Featured session: Patient-Reported Outcomes from the VALOR Trial — Exploring a Potential New Therapy for Dermatomyositis
Join Dr. Lisa Christopher‑Stine, a leading expert in dermatomyositis, as she reviews patient-reported experiences from the VALOR trial — the largest study conducted in adults with Dermatomyositis. Learn how participants described changes in symptoms, daily activities, quality of life, and overall well‑being with an investigational once‑daily oral Medic*tion, and discover why patient-centered research is essential to advancing care for this condition.

Ticketed attendees receive access to all programming and exclusive opportunities to connect with the Myositis community and the experts working to improve care. Together with the kickoff dinner, these two days blend celebration, learning, and action—uniting us to raise awareness, support research, and strengthen the network of care for those living with Myositis. Join us and be part of a powerful movement for change.

Info: Join Myositis Support & Understanding and IV Solutions, RX for a truly unforgettable evening as we kick off the 3rd Annual Myositis Moon Walk.

On May 1, we invite you to gather in the awe-inspiring Saturn V Hall at the Davidson Center, dining beneath the very engines that took humanity to the moon.

This isn’t just a dinner; it’s a celebration of strength and a mission for progress. The evening will be underscored by the elegant melodies of The Prevailing Winds Flute Ensemble and will feature profound insights from Myositis expert Dr. Lisa Christopher-Stine of Johns Hopkins.

Most importantly, we will share the heart of our mission: the powerful, real-life stories of patients who inspire us every day.

Together, we’ll launch our journey toward the Myositis Moon Walk with hope, community, and the shared goal of reaching new heights in care and awareness.

Info: Join us Saturday, May 2, 2026 at the U.S. Space & Rocket Center in Huntsville, AL for the Myositis Moon Walk — a heartfelt collaboration between Myositis Support & Understanding (MSU) and the Myositis Moon Walk team.
Begin the day with a community breakfast sponsored by Priovant, then join us at the U.S. Space & Rocket Center for the Myositis Moon Walk—a day of education, advocacy, and fellowship. Walk alongside patients, caregivers, families, and friends; attend sessions and meet clinicians, researchers, and advocates; and take part in on site activities designed to inform and inspire.
Tickets include event access, on-site activities, and opportunities to connect with clinicians, researchers, and fellow advocates. Join us and be part of a powerful movement for awareness.

Info: Title: Patient-Reported Outcomes from the VALOR Trial: Exploring a Potential New Therapy for Dermatomyositis

Join Dr. Lisa Christopher-Stine, a leading expert in dermatomyositis (DM), for a discussion on patient experiences in the VALOR trial, the largest study ever conducted for adults with DM. Explore what patients reported with an investigational once-daily oral Medic*tion about their symptoms, daily activities, quality of life, and overall well-being. Understand what these findings may mean for patients with DM and why patient-focused research is so important to advancing care for this condition.

Know what’s Happening Next — before everyone else does.

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Host or Publisher Myositis Support & Understanding (MSU)