2025 Coffin-Lowry Syndrome Foundation Gathering

Name: 2025 Coffin-Lowry Syndrome Foundation Gathering
Start: 2025-06-27T08:00:00-05:00
End: 2025-06-28T20:00:00-05:00
Location: Doubletree by Hilton Mt. Vernon

Schedule

Fri, 27 Jun, 2025 at 08:00 am to Sat, 28 Jun, 2025 at 08:00 pm

UTC-05:00

Location

Doubletree by Hilton Mt. Vernon | Mount Vernon, IL

This event is a National Conference bringing families and healthcare professionals together to raise awareness and research about Coffin-Lowry Syndrome. Coming together gives families a chance to meet and connect with others affected by CLS.
I am creating this event on FB to give volunteers and others a central resource to stay up to date on the latest information.