WORKSHOP | PHILADELPHIA, PA

Name: WORKSHOP | PHILADELPHIA, PA
Start: 2025-09-13T08:00:00-04:00
End: 2025-09-13T16:00:00-04:00
Location: Sheraton Philadelphia University City

Schedule

Sat Sep 13 2025 at 08:00 am to 04:00 pm

UTC-04:00

Location

Sheraton Philadelphia University City | Philadelphia, PA

A FULL-DAY WORKSHOP FOCUSED ON IMPROVING LIFE QUALITY FOR INDIVIDUALS WITH DUCHENNE AND BECKER.
INSIGHTFUL PRESENTATIONS:
STANDARDS OF CARE:
Current care guidelines | disease management | quality of life
RESEARCH AND CLINICAL TRIALS:
Drug development pipeline | clinical trial updates
FAMILY SUPPORT: Social-emotional wellness | Caregiver support
PHYSICAL THERAPY AND MEDICAL EQUIPMENT:
CureDuchenne Certified PT® instruction | stretching and equipment demo
CURE DUCHENNE OPEN HOUSE:
Local resources for families | equipment vendors | pharma/biotech representatives
CureDuchenne Cares is an interactive education and outreach program designed to provide the community with information, resources, and best practices for managing Duchenne and Becker’s challenges and improving overall quality of life.
Breakfast and lunch are provided. Travel Assistance is available for eligible applicants. Thanks to our sponsors, this Workshop is offered to the community at no charge.
REGISTER:
https://web.cvent.com/event/2e6f9954-bf0e-407e-8584-61696dd99147/summary?RefId=mrkt