VHL UK/Ireland Patient Support Day 2026

VHL UK/Ireland Patient Support Day 2026

Join us at the Holiday Inn Birmingham Airport for a day dedicated to supporting individuals with VHL, HLRCC and BHD in the UK and Ireland.

This in person event will be filled with informative sessions by clinical experts, including Professor Eamonn Maher and Dr. Scott Shepherd on some very important topics including Belzutifan and dealing with the mental burden of a chronic illness.

The day will provide you with the opportunity to connect with other families facing similar challenges. Whether you're newly diagnosed or a long time VHL warrior, this day is for you.

This day will also be an opportunity to say Thank you and Happy Retirement to Sue Carless, a Genetic Counsellor based at Birmingham Women's Hospital, who has supported countless VHL families over her career.

Come together with our community to learn, share, and support one another on this journey. We can't wait to see you there!

Tickets

Tickets are £3 per person, and each ticket will also serve as an entry to our tombola, where you will have the opportunity to win a VHL UK/Ireland t-shirt.

If you would like to support us further, please consider a £5 donation to the charity via GoFundMe https://www.gofundme.com/f/vhl-uk-ireland-donations

Accessibility and Dietary Requirements

Please contact [email protected] with any accessibility or dietary requirements.

Please note the venue is only able to cater for allergies or medical requirements, and not food preferences.

Accessibility information regarding the hotel can be found at the following link: https://www.ihg.com/holidayinn/hotels/gb/en/birmingham/bhxap/hoteldetail/accessibility