Southeast Regional Fibromuscular Dysplasia (FMD) Patient Conference

Welcome to the Southeast Regional Fibromuscular Dysplasia (FMD) Patient Conference!

Are you or a loved one living with Fibromuscular Dysplasia (FMD)? We invite you to a special conference dedicated to empowering patients and families with knowledge and hope.

What to Expect:

• Expert Insights: Hear from leading specialists in FMD, including Dr. Esther Kim, Director of the Center for Women's Cardiovascular Health at Atrium Health Sanger Heart & Vascular Institute.
• Patient Stories: Connect with others who share your journey and gain strength from their experiences.
• Q&A Panels: Get your questions answered by a panel of experts dedicated to FMD care.
• Meals Provided: Your registration fee covers both breakfast and lunch during the event.

Why Attend?

This symposium is designed to provide valuable information in a supportive and engaging environment. Whether you're newly diagnosed or have been managing FMD for years, you'll find resources and connections to help you navigate your health journey.

Session and Talks:

FMDSA: Opening Remarks

Patient Story: From Uncertainty to Hope

Finding Resilience in the Face of Uncertainty

Arterial Anatomy and Physiology

Arterial Diseases: Stenosis, Aneurysm, Dissection, FMD

Epidemiology of FMD: Who, When, What?

Patient Story: The long journey to diagnosis

FMD Signs and Symptoms

Common Cardiovacular Tests and Their Use

Genetic Testing: Who Should Be Tested and What Do the Results Mean?

Complications of FMD: How Do I Know If I am Having One?

Medications for FMD: Common Prescriptions and Their Purpose

Management of Blockages, Aneurysms, and Dissections

SCAD: Introduction and Acute Management

SCAD: Considerations in the Clinic

The iSCAD Registry: most recent research updates

SCAD Alliance: Advocacy, Research, and Hope

Breakthroughs in Genetic Research in FMD

Top 10 from the FMD Consensus Statement

Research From the US FMD Registry

FMDSA: Two Decades of Supporting Patients with FMD

Hotel Block Information:

Fairfield Inn & Suites Charlotte Uptown

• Dates: Fri, Aug 15 - Sat, Aug 16
• $134.00 per night & $10.00 for parking
• Last Day to Book: Saturday, July 26, 2025

Host or Publisher SHVI