Sips at the Station Benefitting Heroes for Hallie Grace

Name: Sips at the Station Benefitting Heroes for Hallie Grace
Start: 2024-06-18T17:30:00-04:00
End: 2024-06-18T19:00:00-04:00
Location: 102 E Victory Drive, Savannah, GA, United States, Georgia 31401

Schedule

Tue Jun 18 2024 at 05:30 pm to 07:00 pm

UTC-04:00

Location

102 E Victory Drive, Savannah, GA, United States, Georgia 31401 | Savannah, GA

Get excited and join us for Savannah’s most eclectic networking event series, Sips at the Station, as we spotlight a rotation of nonprofits each month. We are excited to announce June 18th’s event will benefit Heroes for Hallie Grace. Heroes for Hallie Grace is a 501(c)3 organization aimed at raising awareness, funding research, and improving the lives of individuals and families impacted by Epidermolysis Bullosa (EB), in Hallie's memory.
EB is quite literally "the worst disease you've never heard of." It is a rare genetic connective tissue disorder that affects 1 out of every 20,000 births in the US (roughly 200 children each year). There are many genetic variations and the symptoms vary widely as well; however, all versions of EB share the same prominent symptom of extremely fragile skin that blisters or tears from any friction or trauma to the skin, which is why they're known as the "Butterfly Children." EB affects both genders and all racial and ethnic groups equally. There is currently no treatment or cure.
Hosted by Ardsley Station, Savannah Master Calendar, and Simply Savannah Marketing, admission is a $10 donation and includes a complimentary beverage from Ardsley Station’s special bar menu and an assortment of unique, off-menu, hors d’oeuvres, all while enjoying live music. Raffle tickets are also available for purchase, and 100% of proceeds from admission and raffle sales go to Heroes for Hallie Grace.
A huge thank you to Year Round Pool for sponsoring the June Sips at the Station event. Thank you also to our longtime sponsors and supporters – Creature Comforts Brewing, Tito's Vodka, and Woodinville Whiskey, as well as all of those who have continued to make this event such a success!