Single Ventricle Families: Join Us at The New England Aquarium

Spend the day at the New England Aquarium connecting with other Fontan and Single Ventricle families, for a special mix of educational sessions, networking opportunities, and family-friendly activities hosted by the team at Boston Children’s Hospital.

• Admission to the aquarium, parking, and lunch are included.
• We will have volunteers on-site to walk children (8+) around the aquarium while parents are in learning sessions.

Can't make it in person? Join virtually!

We’re offering a virtual option so families can take part in the learning and connection from anywhere. Register here to join us via Zoom instead

Info: There’s no “I” in team – meet your care squad and kick off the day with inspiration and energy.

Info: Fontan-Associated Liver Disease: What it means and how we manage it & Living with Single Ventricle: Mental health, neurodevelopment, and thriving through it all

Info: All Grown Up: What to know about transitioning to adult care.

Hear from patients and families who’ve been where you are—and are thriving in their adult lives.

Info: Fontan Fitness: Why exercise is your best medicine & Eating Well: Simple nutrition tips that make a big difference

Info: The SOURCE Registry: How your DNA is helping unlock life-changing discoveries
The FORCE Registry: Using big data and AI to personalize Fontan care
FUEL-2 Study: Can we help you run faster, longer, and stronger?
Understanding Your Heart: Computer modeling that makes it all make sense
The Biventricular Pathway: Who it helps and why it matters

Host or Publisher Boston Children's Hospital and FUEL-2