Share and Care CS Network Family Medical Conference for Cockayne syndrome and Trichothiodystrophy
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� A rare opportunity to connect, learn, and create lifelong friendships is now available! �
A small number of openings have become available for the 2026 Share & Care Family Conference in Minneapolis, July 9–12, and we would love to welcome additional families affected by Cockayne syndrome (CS), Trichothiodystrophy (TTD), and related DNA repair disorders.
For many families, attending a Share & Care conference is a life-changing experience. It is often the first time children meet someone else living with the same condition and the first time parents find themselves surrounded by people who truly understand their journey. Families leave with new friendships, valuable medical knowledge, meaningful research opportunities, and memories that last a lifetime.
This year’s conference will bring together families, researchers, clinicians, and advocates from around the world for a unique weekend of connection, education, support, and hope. Attendees will have opportunities to learn about the latest research, participate in studies that may help advance understanding of these rare disorders, meet leading experts, and spend time with other families who share similar experiences.
While we hope to help some first-time families experience the conference this year, we would be delighted to welcome returning families as well. One of the greatest joys of our annual gathering is reconnecting with familiar faces, celebrating milestones, supporting one another through challenges, and watching the children grow. Whether this would be your first conference or your tenth, we encourage you to apply.
Share & Care is able to provide one hotel room per approved family for up to three nights (Thursday, Friday, and Saturday). We recognize that some children have more than one household or family support system, and we wish we could accommodate everyone. Due to limited funding, however, we are only able to provide one room per family. Families requiring additional rooms are welcome to attend and may reserve extra accommodations at their own expense. Families who choose to arrange their own lodging are also welcome to participate, and Share & Care will continue to cover conference meals, activities, educational sessions, and other conference-related programming.
These openings became available after several families had to cancel due to important medical procedures and surgeries. While we will miss them and keep them in our thoughts and prayers, we are grateful for the opportunity to extend invitations to additional families who may benefit from this special gathering.
The conference begins Thursday, July 9, and concludes Sunday, July 12. Additional details, can be found on the registration landing page.
� We would love the opportunity to welcome new families into our community, reconnect with returning friends, and continue building the relationships, knowledge, hope, and support that make the Share & Care family so special.
https://lp.constantcontactpages.com/ev/reg/8vc8m2v/lp/56da188b-3b2d-45ba-9cf8-ee6dca25c82f
A small number of openings have become available for the 2026 Share & Care Family Conference in Minneapolis, July 9–12, and we would love to welcome additional families affected by Cockayne syndrome (CS), Trichothiodystrophy (TTD), and related DNA repair disorders.
For many families, attending a Share & Care conference is a life-changing experience. It is often the first time children meet someone else living with the same condition and the first time parents find themselves surrounded by people who truly understand their journey. Families leave with new friendships, valuable medical knowledge, meaningful research opportunities, and memories that last a lifetime.
This year’s conference will bring together families, researchers, clinicians, and advocates from around the world for a unique weekend of connection, education, support, and hope. Attendees will have opportunities to learn about the latest research, participate in studies that may help advance understanding of these rare disorders, meet leading experts, and spend time with other families who share similar experiences.
While we hope to help some first-time families experience the conference this year, we would be delighted to welcome returning families as well. One of the greatest joys of our annual gathering is reconnecting with familiar faces, celebrating milestones, supporting one another through challenges, and watching the children grow. Whether this would be your first conference or your tenth, we encourage you to apply.
Share & Care is able to provide one hotel room per approved family for up to three nights (Thursday, Friday, and Saturday). We recognize that some children have more than one household or family support system, and we wish we could accommodate everyone. Due to limited funding, however, we are only able to provide one room per family. Families requiring additional rooms are welcome to attend and may reserve extra accommodations at their own expense. Families who choose to arrange their own lodging are also welcome to participate, and Share & Care will continue to cover conference meals, activities, educational sessions, and other conference-related programming.
These openings became available after several families had to cancel due to important medical procedures and surgeries. While we will miss them and keep them in our thoughts and prayers, we are grateful for the opportunity to extend invitations to additional families who may benefit from this special gathering.
The conference begins Thursday, July 9, and concludes Sunday, July 12. Additional details, can be found on the registration landing page.
� We would love the opportunity to welcome new families into our community, reconnect with returning friends, and continue building the relationships, knowledge, hope, and support that make the Share & Care family so special.
https://lp.constantcontactpages.com/ev/reg/8vc8m2v/lp/56da188b-3b2d-45ba-9cf8-ee6dca25c82f
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Where is it happening?
Minneapolis, Minnesota, United States
Event Location & Nearby Stays:
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Host or PublisherShare & Care Cockayne Syndrome & Trichothiodystrophy Network
