Second Annual KDVS Golf Tournament
Schedule
Mon, 23 Jun, 2025 at 12:00 pm
UTC-05:00Location
Amery Golf Club | Amery, WI
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https://birdease.com/kdvsgolftournamentPlease join us for Amery’s Second Annual KDVS Golf Tournament in honor of Bowen Maxon, all proceeds benefiting the Koolen deVries Syndrome Foundation
Before Bowen’s first birthday, we found out that he has a rare genetic condition called Koolen-de Vries syndrome. His condition, although not life threatening, is a rare genetic mutation that causes developmental delays on an intellectual level, as well as motor development. Along with the delays mentioned comes a laundry list of other things that we have to keep an eye out for as time goes on. Since receiving his diagnosis we have met some incredible care providers, researchers, other families with KDVS, and even the Doctors who discovered the genetic mutation back in 2006.
In those interactions we have really realized the importance of continuous research, especially since it is a very new syndrome being only discovered in 2006. That is what has brought us to the idea of hosting the golf tournament to raise money for the Koolen-de Vries Research Foundation.
We truly appreciate you taking the time to consider joining us on what we hope to be an amazing event for all, and hope to see you there.
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Where is it happening?
Amery Golf Club, 601 Deronda St,Amery, Wisconsin, United StatesEvent Location & Nearby Stays: