PSC Support Manchester Information Day 2023

9:45 Registration and refreshments

10:30 Welcome - Paula Hanford, PSC Support CEO

10:50 Living with PSC - the patient perspective - Martine Walmsley

11:00 PSC: the what, the why and the how? - Dr Palak Trivedi

12:00 Lunch

13:00 Breakout sessions

CHOOSE FROM:

• Liver transplantation for PSC - the patient perspective - Andrew Taylor and Michelle Clayton

• Current clinical trials for PSC - Dr Palak Trivedi and Martine Walmsley

• PSC and IBD - TBC and James Brown

• Living with PSC: The family & friends perspective - Nick Kane, Liz Phillips, Susan Heggie and Maxine Tapp.

14:00 Coffee break - a chance to meet and chat with others

14:30 Breakout sessions

CHOOSE FROM

• Liver transplantation for PSC - the patient perspective - Andrew Taylor and Michelle Clayton

• Current clinical trials for PSC - Dr Palak Trivedi and Martine Walmsley

• PSC and IBD - TBC and James Brown

• Living with PSC: The family & friends perspective - Nick Kane, Liz Phillips, Susan Heggie and Maxine Tapp.

15:30 Coffee break - a chance to meet and chat with others

15:45 Q&A with all speakers - last chance to ask your questions

16:30 End

Dr. Trivedi leads the Birmingham PSC and PBC clinical research program at the Queen Elizabeth Hospital in Birmingham.

He has current interests in immune-mediated liver disease and liver transplantation, and is the current Chief Investigator for UK-PSC and Chair of the BASL Immune-Mediated Liver Disease special interest group (SIG).

Michelle is a Liver Nurse Educator at St. James's University Hospital, Leeds. Michelle has over 30 years of experience in the field of hepatology and liver transplantation. Michelle is passionate about championing quality care for people with liver disease.

Martine was diagnosed with IBD in 2002 and PSC in 2007. She began volunteering for PSC Support in 2007, focusing on helping people with PSC get the best support, information and care possible, and championing PSC research towards a cure.

Andrew had a liver transplant for PSC at St James Hospital in Leeds in 2017 at the age of 35.

Liz’s daughter was diagnosed with AIH/PSC in 2005 aged 12, closely followed by UC. Liz’s husband donated his organs after he died in 2000. Although Jade didn’t become poorly until five years after her dad died, Liz and Jade have promoted organ donation at every opportunity and highlight PSC whenever they can.

Nick's wife is living with PSC. Together they have two young children and two Golden Retrievers. Nick also volunteers his time as the Finance Trustee for PSC Support.

Susan's son Callum was diagnosed with ulcerative colitis in 2007 at the age of 19. A few months later PSC was diagnosed. 15 years later in January 2022, Callum had a liver transplant then a total colectomy/stoma formation in April of the same year. Despite the difficulties of two major operations so close together, Callum's quality of life has improved immensely. Thanks to his donor, donor family and the NHS.

Paula joined PSC Support as its first Chief Executive in May 2022. Her charity background has primarily been in fundraising and business development for a range of charities including Marie Curie and Children Today.

Maxine was diagnosed with PSC in 2006 at the age of 17. She went on to have a liver transplant in 2014. Maxine began volunteering for PSC Support just after her transplant and now works part-time as the charity's Fundraising and Events Officer.

Following a diagnosis of ulcerative colitis in 2007, James was diagnosed with PSC in 2017. James volunteers his time to PSC Support as a Trustee with particular strengths in governance, strategy and income generation.

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