Porphyria Empowered Seattle: Patient & Family Meeting with Dr. Camilla Puronen | APF
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🧬 Porphyria Empowered – Seattle! Learn. Connect. Share.
The American Porphyria Foundation (APF) invites porphyria patients, families, caregivers and friends in Seattle, Washington and the Pacific Northwest to a free in-person patient meeting as part of the APF Patient Meeting Series.
Join us for light fare, time to meet others living with porphyria, and a presentation by porphyria specialist Dr. Camilla Puronen. Come hear expert information about porphyria, ask your questions and connect with a supportive rare disease community.
📅 When: Tuesday, October 6, 2026
🕠 5:30 PM PT – Meet other patients, families and friends
🕕 6:00 PM PT – Meeting begins
📍 Where: W Hotel Seattle, 1112 Fourth Avenue, Seattle, WA 98101
🚗 Free parking provided
🤝 Hosted by APF Patient Leaders Nancy Pometta & Melissa Nagin
✅ Please RSVP here:
https://forms.cloud.microsoft/Pages/ResponsePage.aspx?id=-XU4dKlZyU2H4qwXUDasMsUzMJQbmFRIk6rFt9TAs9tUNU1NTkJLQjlRQTJKOFNTVTJONkdKRlA3Uy4u
Need help with the form? We're happy to walk you through it:
📧 [email protected]
📞 866-APF-3635 (866-273-3635)
Everyone is welcome!
Whether you're living with acute hepatic porphyria (AHP), acute intermittent porphyria (AIP), erythropoietic protoporphyria (EPP), X-linked protoporphyria (XLP), porphyria cutanea tarda (PCT) or another type of porphyria, or you support someone who is, this meeting is for you.
The Patient Meeting Series is sponsored by Alnylam, Recordati Rare Diseases and Disc Medicine.
Learn more: www.PorphyriaFoundation.org
#Porphyria #PorphyriaAwareness #PorphyriaEmpowered #RareDisease #AcuteHepaticPorphyria #EPP #Seattle #SeattleEvents #PNW #PatientAdvocacy #AmericanPorphyriaFoundation
The American Porphyria Foundation (APF) invites porphyria patients, families, caregivers and friends in Seattle, Washington and the Pacific Northwest to a free in-person patient meeting as part of the APF Patient Meeting Series.
Join us for light fare, time to meet others living with porphyria, and a presentation by porphyria specialist Dr. Camilla Puronen. Come hear expert information about porphyria, ask your questions and connect with a supportive rare disease community.
📅 When: Tuesday, October 6, 2026
🕠 5:30 PM PT – Meet other patients, families and friends
🕕 6:00 PM PT – Meeting begins
📍 Where: W Hotel Seattle, 1112 Fourth Avenue, Seattle, WA 98101
🚗 Free parking provided
🤝 Hosted by APF Patient Leaders Nancy Pometta & Melissa Nagin
✅ Please RSVP here:
https://forms.cloud.microsoft/Pages/ResponsePage.aspx?id=-XU4dKlZyU2H4qwXUDasMsUzMJQbmFRIk6rFt9TAs9tUNU1NTkJLQjlRQTJKOFNTVTJONkdKRlA3Uy4u
Need help with the form? We're happy to walk you through it:
📧 [email protected]
📞 866-APF-3635 (866-273-3635)
Everyone is welcome!
Whether you're living with acute hepatic porphyria (AHP), acute intermittent porphyria (AIP), erythropoietic protoporphyria (EPP), X-linked protoporphyria (XLP), porphyria cutanea tarda (PCT) or another type of porphyria, or you support someone who is, this meeting is for you.
The Patient Meeting Series is sponsored by Alnylam, Recordati Rare Diseases and Disc Medicine.
Learn more: www.PorphyriaFoundation.org
#Porphyria #PorphyriaAwareness #PorphyriaEmpowered #RareDisease #AcuteHepaticPorphyria #EPP #Seattle #SeattleEvents #PNW #PatientAdvocacy #AmericanPorphyriaFoundation
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Where is it happening?
W Hotel Seattle, 1112 Fourth Avenue, Seattle, WA 98101, United States
Event Location & Nearby Stays:
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Host or PublisherAmerican Porphyria Foundation
