Orseck Symposium: Hypoventilation in Patients with Neuromuscular Disease

Please join the Division of Pulmonary and Sleep Medicine at Children’s Hospital of Philadelphia (CHOP) for an afternoon symposium, titled “Orseck Symposium on Hypoventilation Assessment and Management in Patients with Neuromuscular Disease.” This event is designed for providers caring for pediatric patients with neuromuscular disease.

Leading experts will provide education about the development of hypoventilation in patients with neuromuscular disease, as well as provide recommendations about how best to assess and manage hypercapnic respiratory failure effectively. This event will be held in a hybrid format so participants can join us in person or virtually.

• 1 p.m.: Introduction
• 1:05 – 1:15 p.m.: Remarks from the Orseck Family
• 1:15 – 1:40 p.m.: Pathophysiology of Respiratory Insufficiency/Hypoventilation in Neuromuscular Disease, by John E. Pascoe, MD, of Cincinnati Children’s Hospital
• 1:40 – 2:05 p.m.: Assessment and Diagnoses of Hypoventilation in Neuromuscular Disease: Current Practice, by Jon Maniaci, MD, of Children’s Hospital of Philadelphia
• 2:05 – 2:30 p.m.: A Novel Approach to Respiratory Insufficiency in Neuromuscular Disease, by Oscar ‘Hank’ Mayer, MD, of Children’s Hospital of Philadelphia
• 2:30 – 2:45 p.m.: Break
• 2:45 – 3:10 p.m.: Ventilation Strategies for Management of Hypoventilation in Children with Neuromuscular Disease, by Reshma Amin, MD, MSc, FRCPC, of The Hospital for Sick Children, Toronto, Canada
• 3:10 – 3:35 p.m.: Lessons Learned from Managing a Home Ventilation Program, by Robert J. Graham, MD, of Boston Children’s Hospital
• 3:35 – 4 p.m.: Ambulatory Assessment and Monitoring of Hypoventilation, by Jason Ackrivo, MD, MSCE, of the Hospital of the University of Pennsylvania
• 4 – 4:30 p.m.: Panel discussion and questions

The deadline for registration is Friday, Nov. 7. A link to join the symposium virtually via Microsoft Teams be sent after registration.

Contact Jon Maniaci at [email protected] or Oscar “Hank” Mayer at [email protected].

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