Managing Late-onset Pompe Disease in the Era of Newborn Screening
Schedule
Mon Mar 20 2023 at 04:00 pm to 05:30 pm
Location
Hyatt Regency Salt Lake City | Salt Lake City, UT
About this Event
- Monday, March 20, 2023
LEARNING OBJECTIVES
DESCRIBE subsequent genetic testing and clinical assessment requirements necessary to confirm a diagnosis of LOPD in the case of positive NBSASSESS the latest data on next-generation ERTs for LOPD, considering their use in cases diagnosed via NBSEVALUATE evolving evidence and perspectives on the management and initiation of ERT in pre-symptomatic/asymptomatic PD patients identified by NBSAPPLY measures of disease severity/progression into clinical decisions regarding ERT initiation, selection, and optimization in LOPD diagnosed via NBSDEVELOP individualized management paradigms for LOPD diagnosed via NBS considering the latest clinical evidenceAGENDA
4:00 – 4:15 PM Registration and Reception
4:15 – 4:20 PM Welcome and Introduction
4:20 – 4:40 PM Clinical Updates in the Treatment of LOPD: Evaluating the Latest Next-generation ERTs
4:40 - 4:55 PM Expanding Access to NBS: Considerations for ERT Initiation and Treatment Decision-making in LOPD
4:55 – 5:20 PM Clinical Case Challenge: Implementing Evolving Best Practices for LOPD Diagnosed via NBS
5:20 – 5:30 PM Conclusion and Q&A
This activity is jointly provided by AKH Inc., Advancing Knowledge in Healthcare and Catalyst Medical Education, LLC.
This activity is supported by educational grant from Sanofi
Where is it happening?
Hyatt Regency Salt Lake City, 170 South West Temple Street, Salt Lake City, United StatesEvent Location & Nearby Stays:
