*HYBRID EVENT* Epidermolysis Bullosa 3rd- 4th October 2024

Overview:

St John’s DermAcademy are running a unique two day study programme about the rare, genetically inherited condition Epidermolysis Bullosa (EB). This will be delivered by EB Clinical Nurse Specialists and leading Consultant Physicians and Surgeons from Guy’s & St Thomas’ NHS Foundation Trust and Great Ormond Street Hospital. The EB clinical teams from both centres work in collaboration with DEBRA UK.

The study days are aimed at healthcare professionals who are involved in the management or care of patients with EB, but may be of interest to anyone wishing to increase their understanding of this rare condition.

This popular course has been running for a number of years and attracts delegates from across the UK and internationally. The course is consistently highly regarded and well evaluated.

Topics covered will include:

• What is Epidermolysis Bullosa?
• Wound care and dressings management
• Physiotherapy in EB
• Occupational therapy in EB
• Sexuality, pregnancy and childbirth in EB
• Care of a new born with EB
• Nutritional management and challenges
• Cancer
• Palliative care & End of Life
• Ocular and dental management in EB
• Research
• Anaesthetic management
• Patient perspectives

Please note this course is LIVE and will not be accessible at a later date to view on demand.

This is a hybrid course meaning you can register to join in person or virtually/remotely.

Venue for in person attendance: Science Gallery London, Great Maze Pond, London, SE1 9RT

Who should attend?

The course is aimed at healthcare professionals who are involved in the management or care of patients with EB, but may be of interest to anyone wishing to increase their understanding of this rare condition, particularly dermatology nurses, trainees and consultants.

Cost:

In person attendance rates: Standard Delegate rate: £260, Concessional Delegate rate (trainees, nurses): £220.

Virtual attendance rates: Standard Delegate rate: £220, Concessional Delegate rate (trainees, nurses): £145.

Discounted tickets are available for dermatology trainees and nurses.

For concessional registration please contact [email protected] providing a work-based email and stating your name, job title and place of work, to obtain a discount code.

​Points awarded: CPD points requested

Course directors: Janet Hanson, Clinical Nurse Specialist (EB) and Karen Snelson, Advanced Nurse Practitioner (EB)

Provisional programme: Day 1 and Day 2

Host or Publisher St John's Derm Academy