Human Growth Foundation Skeletal Dysplasia Family Day
About this Event
The Human Growth Foundation (HGF) invites you to a Family Day dedicated to individuals and families navigating life with skeletal dysplasia. This event is built with you in mind — the parents, caregivers, and loved ones who advocate, guide, and stand beside individuals with rare bone conditions every day.
This free program offers a s space to learn, connect, and gain clarity on the transition from pediatric to adult care — a stage that many families find both exciting and overwhelming.
What Parents and Caregivers Can Expect:
- Guidance from leading experts on managing medical, emotional, and practical needs during the transition to adulthood
- Conversations that address real-life challenges families face
- Opportunities to meet other parents and caregivers who understand your journey
- A supportive environment where your questions, concerns, and experiences are valued
All attendees will also receive complimentary passes to SEA LIFE London Aquarium, offering a fun family outing after the event.
The Human Growth Foundation (HGF) is considered the world’s leading nonprofit organization whose mission is to provide research, education, patient support, and advocacy for children (and adults) with rare growth, bone and endocrine conditions.
For more information about the Human Growth Foundation and to obtain resources, please visit HGFound.org.
Where is it happening?
Event Location & Nearby Stays:
USD 0.00 to USD 535.38
