HGF Skeletal Dysplasia Family Day - Boston, MA, USA
About this Event
The Human Growth Foundation (HGF) is pleased to invite you to HGF Skeletal Dysplasia Family Day 2026, an educational and community-focused event dedicated to improving the patient and family journey in rare bone disorders.
📅 Saturday, November 21, 2026
🕑 9:00 AM – 12:00 PM
📍Boston Children's Hospital - Room: Karp 1 | 1st Floor
300 Longwood Ave, Boston, MA 02115
Whether you are living with a rare bone disorder, caring for a loved one, or supporting patients through your clinical practice, this complimentary event offers an opportunity to learn, connect, and engage with leading experts and members of the rare disease community.
Featured Educational Sessions
Medical Overview
Presented by Dr. Jennifer Arnold, Program Director
Mental Health / No Bullying
Presented by Katie Rosenthal, MSW, LICSW
Eating Well for Strong Bodies
Presented by Brianna Mears, RD, LDN
Why Attend?
✅ Gain practical insights from recognized experts
✅ Ask questions and participate in meaningful discussions
✅ Connect with patients, families, and caregivers who share similar experiences
✅ Learn about resources, advocacy opportunities, and support services
✅ Enjoy a complimentary lunch and receive admission tickets to New England Aquarium
Together, we can advance education, strengthen support networks, and improve outcomes for children and adults living with rare bone disorders.
We encourage patients, caregivers, family members, healthcare professionals, nurses, physician assistants, endocrinologists, and allied healthcare providers to attend.
Reserve Your Spot Today
We look forward to welcoming you and your family to a morning of learning, connection, and empowerment.
*** Bring your questions. Our experts will be available for discussion, and you'll have the opportunity to meet other families navigating similar journeys. Together, we can build a stronger rare disease community.
Photo & Video Consent
By registering for this event, you grant the Human Growth Foundation permission to photograph and record video of you during the program. These images and recordings may be used for educational, promotional, and archival purposes.
If you do not wish to be photographed or recorded, please notify event staff at check‑in so we can respect your preference.
The Human Growth Foundation (HGF) is considered the world’s leading nonprofit organization whose mission is to provide research, education, patient support, and advocacy for children (and adults) with rare growth, bone and endocrine conditions.
For more information about the Human Growth Foundation and to obtain resources, please visit HGFound.org.
Where is it happening?
Event Location & Nearby Stays:
USD 7.18 to USD 535.38
