Fowler's Syndrome Conference

Join Fowler’s Syndrome UK (FSUK) for the first ever multidisciplinary, consensus-building conference for Fowler’s Syndrome (FS) and Chronic Idiopathic Urinary Retention (CIUR).

Hosted at UCL Queen Square Institute of Neurology, this ground-breaking two-day meeting brings together professionals from across health, research, policy and industry to build the first shared framework for diagnosing, managing and understanding Fowler’s Syndrome and CIUR.

This even will align evidence, improve pathways and shape the future of care for this under-recognised condition.

Practical Details:

Dates: 19–20 February 2026
Times: Approx. 09:00–17:00 each day, with evening networking opportunities
Venue: UCL Queen Square Institute of Neurology, 33 Queen Square, London, WC1N 3BG
Agenda, itinerary and event terms & conditions to follow.

The venue (33 Queen Square) is fully accessible and full access information will follow.

Tickets:
£70 Early bird
£90 Standard
£40 Student

For all enquiries, please contact:

Please note:

This listing is for the two-day clinical consensus-building conference. It is a specialist meeting for healthcare professionals, health-tech and policy makers only. Patient attendance is restricted to invited patient advisors. The programme will focus on reviewing evidence, aligning practice and developing shared guidance for the assessment and treatment of Fowler’s Syndrome and Chronic Idiopathic Urinary Retention (CIUR).

We want to be clear for all paying attendees that this is a professional working meeting, not a general educational or public event.

Who Should Attend:

• Clinicians: Urologists, neurologists, gynaecologists, pain specialists, surgeons, physiatrists, GPs, psychologists, nurses and advanced nurse practitioners.
• Allied Health Professionals: Physiotherapists, occupational therapists, paramedics and continence specialists.
• Researchers, Policy makers, Academics & Medical Students
• Industry & Charity Partners: Organisations supporting innovation in women’s health and urinary disorders.
• And other specialists involved in the assessment, treatment or research of Fowler’s Syndrome and CIUR.

CPD accreditation pending.

For Patients:

FSUK will host a separate community event at UCL on the afternoon of 20 February.
This is not part of the clinical conference. A separate Eventbrite page will be released shortly.

Fowler's Syndrome Conference Key Themes & Focus Areas:

• Core features of the clinical assessment of individuals with FS/CIUR
• Psychological and medical comorbidities
• Urological & Neurological investigations
• Neuromodulation (sacral and pudendal)
• Botulinum toxin injections into the urethral sphincter
• Urological treatments (such as alpha-blockers)
• Urological surgeries
• Pelvic physiotherapy and transcutaneous tibial nerve stimulation
• Pain management and psychological therapies
• Catheterisation
• Pregnancy and birth
• Assessment, management and best practice of FS/CIUR in adolescents

What to Expect:

• Expert-led discussions on diagnosis, management and treatment
• Review of the latest global evidence and clinical research
• Development of practical guidance for assessment, treatment and education
• Cross-disciplinary collaboration on the first FS /CIUR care pathway and GP toolkit
• Consensus-building sessions to guide international best practice

Why it Matters:

Fowler’s Syndrome / Chronic Idiopathic Urinary Retention (CIUR) remains one of the most poorly understood, inconsistently managed, and under-researched conditions in UK urology, neurology, pain medicine and pelvic health. Despite affecting up to an estimated 20,000 women in the UK alone, there is no national framework, no clinical guideline, and no standardised care pathway. This conference addresses that gap directly.

FSUK's patient-led phenotyping of 265 patients, published in Continence magazine* found:

• Delays of 3.8 years on average before receiving a diagnosis
• Fragmented pathways, with limited tertiary centre offering specialist expertise
• High psychological and psychological burden (85% say the condition has a severe or devastating effect on their lives)
• Severe quality-of-life impact, affecting continence, mobility, relationships, sexual health, pregnancy, and daily function
• Limited mental-health support, with only 30% offered appropriate care
• Frequent dismissal of symptoms, with 76% told their symptoms are psychological or ‘all in their head’
• 91% experience frequent or chronic utis

*https://www.sciencedirect.com/science/article/pii/S277297372400643X

Why Attend:

• Shape Fowler's syndrome consensus guidance
• Contribute to the first cross-disciplinary care pathway
• Review the latest evidence and research
• Understand lived experience
• Collaborate with leading experts
• Improve outcomes for an underserved population
• Build practical tools for frontline care

More Details:

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Host or Publisher Fowler’s Syndrome UK