Duffine Family Cardiac Transition Education Day: The Beat Goes On
About this Event
Duffine Family Cardiac Transition Education Day: The Beat Goes On
Transitioning from pediatric CHD care to adult CHD care can feel like entering a whole new world — new doctors, new systems, new responsibilities, and new questions. This day is designed to help young adults with congenital heart disease build confidence, learn practical tools, and connect with others who understand the transition experience.
Attendees will have the opportunity to meet CHD care team members, hear patient stories, participate in interactive sessions, and learn more about navigating adult care.
Topics will include mental health, college, exercise, insurance navigation, MyChart, pregnancy and contraception, and real-life conversations with CHD patients and providers.
The day will also include giveaways, a photo booth, interactive activities, and time to connect with other young adults, families, caregivers, and care team members.
Light breakfast and lunch will be served.
Please use this link to register: Duffine Family Cardiac Transition Education Day:The Beat Goes On - Children's Hospital of Philadelphia - Continuing Education (CE) - Duffine Family Cardiac Transition Education Day:The Beat Goes On
(Registration Fee can be waived - please email [email protected])
Audience:
Young adults with CHD who are new to adult care, recently transitioned from pediatric care, or preparing to take a more active role in their health care, along with their caregivers/support people.
Agenda:
PROGRAM | SATURDAY, JUNE 27, 2026
8:15 a.m. Arrival, Registration and Breakfast
9 a.m. Welcome and Introduction
STARTING WITH YOU
- 9:20 a.m. Keynote / Patient Story
- 9:40 a.m. Real Talk: Stress, Feelings and Living With CHD
- 10 a.m. ACHD App Presentation
- 10:10 a.m. Break
MORNING BREAKOUT SESSIONS
- 10:20 a.m. MyChart 101: Owning Your Health
10:20 a.m. Letting Go, Lifting Up: What Adults With CHD Want Parents to Know
10:20 a.m. My Heart, My Story
10:20 a.m. LGBTQ+ Health
Break (11:00 am)SKILLS FOR THE ROAD AHEAD
- 11:20 a.m. Your Body, Your Pace: Staying Active With CHD
- 11:40 a.m. Insurance and the Nuts and Bolts
Break: Lunch & Ice Cream Social
MIDDAY BREAKOUT SESSIONS
- 12:30 p.m. College and CHD
12:30 p.m. Parent to Parent
12:30 p.m. My Heart, My Story
12:30 p.m. Transition App and Tools
AFTERNOON BREAKOUT SESSIONS
- 1 p.m. Pregnancy and Contraception
1 p.m. Surgical Preparation
1 p.m. My Heart, My Story
1 p.m. Transition App and Tools
MOVING FORWARD
- 2 p.m. Drugs, Sex and Rock and Roll: Questions You Were Afraid to Ask Your Cardiologist
- 2:30 p.m. Adjourn
Where is it happening?
USD 0.00
