BDFA Bereaved Parents Weekend Away

Schedule

Sat, 31 Oct, 2026 at 12:00 pm to Sun, 01 Nov, 2026 at 12:00 pm

UTC+00:00
Location

Premier Inn London Kew Bridge hotel | Brentford, EN

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Join us for a weekend event for parents who’ve lost a child to Batten disease and who are registered with the BDFA.
About this Event

When: Saturday 31st October – Sunday 1st November 2026

Where: Meeting at the Premier Inn London Kew Bridge hotel, Brentford, London


Saturday 31st October:

  • 12pm: Arrive at Premier Inn London Kew Bridge to get checked in
  • 1pm: Taxis to Kew Gardens – time to meet and mingle with each other
  • (there are Cafes at Kew Gardens if you want to get lunch or a light-bite)
  • 7pm: 2 course dinner at Premier Inn


Sunday 1st November

  • Breakfast
  • 10am: Reflection Space where we celebrate the children
  • Tea/Coffee and pastries provided
  • 11.30: Round up and Goodbyes
  • Midday: Head home


Accommodation: Premier Inn, London Kew Bridge, will include 2 course dinner plus a drink, bed and breakfast.

When booking your ticket please select to book a room so these can be allocated.

Cost: £40 per person. The BDFA will cover the majority of your dinner, bed, breakfast and Kew Gardens ticket admission. You will need to orgaise your own travel arrangements. (If you need assistance in arranging your travel, please contact Mimi or Sarah).

Who can come? Parents who’ve lost a child to Batten disease and who are registered with the BDFA

Can children come too? No, this event is for parents only

Nearest Tube Station: Kew Gardens 0.9 miles
Nearest Railway Station: Brentford 0.4 miles (0.6 km)



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Where is it happening?

Premier Inn London Kew Bridge hotel, 52 High Street, Brentford, United Kingdom

Event Location & Nearby Stays:

Tickets

GBP 0.00 to GBP 40.00

Know what’s Happening Next — before everyone else does.
Batten Disease Family Association
Host or PublisherBatten Disease Family Association

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