Alport Connect 2026 - Philadelphia (In-Person Only Event)

Alport Connect 2026 is a unique opportunity to interact with medical professionals who have expertise in our rare disease, researchers, and with other Alport syndrome patients/families from across the country. It will be a weekend of learning, connecting, and socializing as a community of patients and families. You'll leave the weekend-long event feeling empowered with knowledge and supported by new friends in the extended Alport community.

Whether you are newly diagnosed or a patient/caregiver with a long history and journey with Alport syndrome, there is a place and purpose for you at Alport Connect 2026.

Click the orange "Select Tickets" button on the right to receive your free Alport Connect 2026 weekend ticket(s) for Saturday, July 18th and Sunday, July 19th activities at the Alloy King of Prussia (just outside of Philadelphia).

We will also be holding an informal welcome gathering on Friday, July 17th at 4PM local time at the Hammer & Fire Restaurant and Cocktail Lounge within the Alloy (event venue). Tickets are not required for this portion of the event.

Alport Connect 2026 is in-person only and tickets are limited. We advise reserving your ticket(s) early! However, if your plans change and you are unable to attend, please notify [email protected] so that we can release your spot to other patients/family members.

If reserving more than one ticket, please answer the registration questions uniquely for each individual attending. Individual names are required for each registration. Individual email addresses for each are helpful. Knowing who is attending helps us plan a more successful event. Individual email addresses for minors is not required at registration.

Please note that required contact information for Teen Program registrants is solely for event communications. This information will not be kept on file after the event, nor will Teens be contacted for any non-event purposes.

Alport Connect 2026 includes two simultaneous program tracks:

1) Adult Program (patients and family members ages 20 and up)

2) Teen Program for individuals ages 13-16 (inclusive) and ages 17-19 (inclusive).

All programs will be facilitated by medical professionals and trained patient volunteers.

As space is limited, we can accommodate up to one unaffected sibling ages 13-19 in the teen program.

Lodging Information

We have secured a room block at the Alloy King of Prussia for a rate of $169/night if booked by June 26, 2026. Reservations for the room block can be made here.

Update as of 4/16/26: As of this date, there are rooms still available in our block.

For more information and alternative lodging options within a mile of the venue, click here to view our Lodging Overview Document.

Event Parking

Complimentary self-parking is available for all hotel patrons. Preferred parking is also available in designated locations for a nightly fee of $10 or $5 for daytime use. We will provide rideshare information and directions to the meeting space as the event gets closer.

Travel and Lodging Reimbursement

While funds are available, partial travel reimbursements will be offered on a first-come, first-served basis (by ticket reservation date) to individuals (ages 13+) who indicate they have interest in travel support and are patients or parents of patients during the ticket checkout process. Eligible individuals interested in receiving partial travel reimbursement will be contacted via email by ASF staff, using the email address provided for the ticket reservation. To support as many families as possible, please note there is a maximum travel stipend amount for each family living in the same household.

Testimonials from last year's Alport Connect attendees:

“It is a great resource to learn more about Alport syndrome, connect, and find a community.”

"This was a wonderful conference and the information is invaluable. The setting was professional, the agenda was packed with great speakers/presenters, the event moved along in an engaging way. I feel very blessed to have attended and I look forward to next year's event. Thank you for the positivity and hope that was included in each presentation.”

“You learn more and more every year. It's a growing experience.”

COVID Policy for Alport Connect 2026

By registering for Alport Connect 2026, you acknowledge that Alport Syndrome Foundation reserves the right to implement COVID safety precautions based on the health climate at the time of the event, including, but not limited to, an indoor mask policy.

In the interest of everyone's health, we respectfully request that individuals experiencing COVID-19 symptoms or other illnesses please refrain from attending.

2025 Alport Connect Recap Video

The 5 minute video below provides a recap of ASF's Alport Connect 2025 patient and family meeting in Chicago, including brief interviews with attendees and speakers.