ACHEEV Symposium on Ethical Governance of Health Data Sharing in Australia

This Symposium features interdisciplinary speakers who will discuss participatory approaches to ethical governance of health data sharing.
About this Event

Advances in digital technologies, analytics and artificial intelligence have created vast quantities of health data, and enabled their use for purposes ranging from clinical care to research and innovation. The Australian Centre for Health Engagement, Evidence and Values (ACHEEV) has recently led projects that examined the complex ethical, legal and social implications of health data sharing, privacy, consent requirements, public benefit, data security, and data ownership. Our research has also highlighted the need for greater clarity in legal, ethical, and policy frameworks, as well as the importance of transparent governance and community engagement.

This full-day symposium will convene a diverse group of interdisciplinary scholars and stakeholders from across health, research, policy, and community sectors to discuss participatory approaches to the ethical and regulatory governance of health data sharing in Australia.

This project is supported by the NSW Agency for Clinical Innovation and Digital Health CRC Limited (DHCRC). DHCRC is funded under the Australian Commonwealth's Cooperative Research Centres (CRC) Program.

International keynote speaker

Amy Darlington, Director, Policy Partners, United Kingdom. Amy specialises in deliberative engagement, participatory policy formation, strategy development and strategic communications and stakeholder engagement. She was the Engagement Lead for OneLondon, a collaborative of London’s five Integrated Care Systems. In 2020 OneLondon held a Citizen Summit, the world’s largest public deliberation on the use of health and care data.

Confirmed speakers

• Tara Dimopoulos-Bick, Stream Lead for Design, Capability and Experiential Evidence, Agency for Clinical Innovation, NSW Health.
• Professor Louisa Jorm, Foundation Director, Centre for Big Data Research in Health, University of New South Wales.
• Dr Felicity Flack, Senior Manager, Strategy and Services, Population Health Research Network.
• Associate Professor Courtney Ryder, College of Medicine and Public Health, Flinders University.
• Associate Professor Rebekah McWhirter, ANU College of Law, Governance and Policy.
• Emeritus Professor Dianne Nicol, Faculty of Law, University of Tasmania
• Dr Heidi Green, ACHEEV, University of Wollongong.
• Dr Yves Saint James Aquino, ACHEEV, University of Wollongong.

The symposium will include a panel featuring members of an ACHEEV-led citizens' jury on health data sharing.

Attendance is free but space is limited. Please register as soon as you can!

About ACHEEV

The Australian Centre for Health Engagement, Evidence and Values (ACHEEV) was established in January 2019. Our work focuses on health: the health of people, other animals, society and the planet, and how all of these things are connected. Our mission is to make health systems more inclusive and democratic. In everything we do, we ask how we can work towards greater justice and equity. Visit our website to know more.

Banner image: Photo by Markus Winkler on Unsplash