2nd ELSI Conference

The ELSI Node is pleased to invite researchers, healthcare professionals, policymakers and patient support groups to share experiences, cases, and insights on the Ethical, Legal, and Social Issues (ELSI) surrounding rare conditions at the 2nd ELSI Conference, hosted at Cardiff University UK.

This free one-day conference will explore the ethical, legal and social issues surrounding rare disease research and clinical practice, with a focus on how ethics can be embedded alongside the mainstreaming of genomics across clinical specialties.

The conference will bring together speakers and delegates from across the Rare Disease Research Community Network and the ELSI Node Partnership.

Please note that we are unable to cover costs for travel, accommodation and subsistence to general delegates, i.e. attendees who are not presenting as a plenary speaker or panel members.

The ELSI Node is part of the Rare Disease Research UK Network and focuses on the ethical, legal and social implications of rare disease research and genomic medicine. Further information about ELSI can be found: https://rd-research.org.uk/node/elsi/

Research Node updates from across the ELSI Node Partnership [The University of Manchester, The University of Oxford and Cardiff University]

PPIE dedicated session exploring perspectives from Genomics Partnership Wales, including discussion around lived experience, communication and engagement in genomic medicine.

• Prof. Adam Hedgecoe - Professor of Social Science, Cardiff University
• Dr. Janneke Kuiper - Postdoctoral Fellow, Centre for Sociological Research, KU Leuven
• Dr. Celine Lewis - Senior Behavioural Scientist, University College London

Presentation of findings from Cardiff University examining specialist training needs for mainstreaming genomics across clinical specialties. Followed by a discussion-focused interactive workshop.

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Host or Publisher Manchester Rare Conditions Centre