2025 Pituitary Brain Tumor Family Conference

Name: 2025 Pituitary Brain Tumor Family Conference
Start: 2025-11-15T09:00:00-05:00
End: 2025-11-16T12:00:00-05:00
Location: CHOP Buerger Center for Advanced Pediatric Care - Raymond G. Perelman Campus

Schedule

Sat, 15 Nov, 2025 at 09:00 am to Sun, 16 Nov, 2025 at 12:00 pm

UTC-05:00

Location

CHOP Buerger Center for Advanced Pediatric Care - Raymond G. Perelman Campus | Philadelphia, PA

Come join us at the Pituitary Brain Tumor Family Conference to learn, connect, and support each other in person!
About this Event

Welcome to the Pituitary Brain Tumor Family Conference!

This is a great opportunity for patients and families affected by pituitary brain tumors to come together and learn from experts in the field. Join us at the CHOP Buerger Center for Advanced Pediatric Care - Raymond G. Perelman Campus for a day filled with informative sessions, networking, and support.

Whether you're a patient, caregiver, family member or healthcare professional, this event is a chance to connect with others who understand what you're going through. Don't miss out on this valuable experience!

Agenda

🕑: 09:00 AM - 09:15 AM
Welcome
Host: Craig Alter, MD
🕑: 09:15 AM - 10:00 AM
Navigating the Healthcare System
Host: Representative from National patient Advocate Foundation
🕑: 10:00 AM - 10:15 AM
Break
🕑: 10:15 AM - 10:45 AM
Research Updates
Host: Shana McCormack, MD
🕑: 10:45 AM - 11:00 AM
Break
🕑: 11:00 AM - 11:15 AM
Sponsor Presentation
Host: Rhythm Pharmaceuticals
🕑: 11:15 AM - 12:00 PM
Managing AI, DI/ AVP-D, and GH Deficiencies
Host: Craig Alter, MD
🕑: 12:00 PM - 01:15 PM
Lunch & Stress Dosing Demonstration
Host: Stress dosing demonstration will occur during lunch
🕑: 01:15 PM - 02:00 PM
Breakout sessions

Info: Adult Endocrine Issues – Lewis Blevins, MD
Sex Hormone Replacement (Male) – TBD
Sex Hormone Replacement (Female) – TBD

🕑: 02:00 PM - 02:15 PM
Break
🕑: 02:15 PM - 03:00 PM
Tumor Treatment Approaches
Host: Cassie Kline, MD
🕑: 03:00 PM - 03:45 PM
Navigating Special Education Services
Host: Jennifer Miller, MD
🕑: 03:45 PM - 04:00 PM
Break
🕑: 04:00 PM - 05:00 PM
General Q&A Panel
Host: Featuring all available conference speakers
🕑: 05:00 PM - 05:15 PM
Closing Remarks
Host: Amy Wood, RAWF Executive Director & Founder
🕑: 08:00 AM - 09:00 AM
Breakfast
🕑: 09:00 AM - 09:30 AM
Update on RAWF's Work
🕑: 09:30 AM - 10:15 AM
Caregiver & Survivor Roundtable
🕑: 10:15 AM - 10:30 AM
Break
🕑: 10:30 AM - 11:15 AM
Grief Support Fireside Chat
Host: Holly Gainsboro
🕑: 11:15 AM - 11:30 AM
Closing Remarks & Farewell